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Grant Abstract
A Policy-Oriented History of Newborn Screening for PKU
Phenylketonuria (PKU) has played a prominent role in the development of modern genetic medicine. Individuals with this rare inherited disease are unable to metabolize phenylalanine, an essential…- adolescence (12-20)
- adult human (21+)
- behavioral /social science research tag
- Behavioral Genetics
- Clinical Research
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Publication
Factors affecting nurses' genetic nursing competency: A systematic review
Nursing Education in Practice -
Publication
Playing catching up: Proceedings of the 1st Spanish conference on genomic medicine
AIDS Reviews -
Publication
Race, ethnicity, and ancestry reporting in genetic counseling research: A focused mapping review and synthesis
Journal of Genetic Counseling -
Publication
‘If I knew more… I would feel less worried’: Filipino Americans’ attitudes and knowledge of genetic disease, counseling, and testing
Public Health Genomics -
Publication
Patient-facing genetic and genomic mobile apps in the UK: A systematic review of content, functionality, and quality
Journal of Community Genetics -
Publication
Community engagement strategies for genomic studies in Africa: A review of the literature
BMC Medical Ethics