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831 - 840 of 7243 Topics
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Publication
Returning raw genomic data: Rights of research participants and obligations of health care professionals
Medical Journal of Australia -
Publication
HIPAA's individual right of access to genomic data: Reconciling safety and civil rights
Am J Hum Genet -
Publication
Impact of policy change on late-term abortion: A two-decade analysis
Archives of Gynecology and Obstetrics -
Research Tool
"What We Will Do with Your Data and Samples," Video for American Indian and Alaska Native Participants, All of Us Research Program
"What We Will Do with Your Data and Samples" is a 1 minute and 43 second video, created by the All of Us Research Program (All of Us) , that informs American Indian and Alaska Native… -
Additional Resource
Consensus Study Report, Putting People on the Map: Protecting Confidentiality with Linked Social-Spatial Data, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2007)
This National Academies Press publication documents the evidence-based consensus of a committee of experts on confidentiality and spatial information linked to social and behavioral data. It outlines…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
A contextual integrity approach to genomic information: What bioethics can learn from big data ethics
Medicine, Health Care and Philosophy -
Grant Abstract
Center for Transdisciplinary ELSI Research in Translational Genomics
Harvesting the benefits of genomics requires a new kind of transdisciplinary cooperation. Over the next three years, we will create the Center for Transdisciplinary ELSI Research in Translational…- Adult
- Advisory Committees
- Affect
- Aging
- base
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Publication
Benefit-sharing and biobanks
Cambridge University PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…