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Publication
Biotechnology: Sovereignty and sharing
Kluwer AcademicDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Genomic medicine implementation protocols in the PhenX Toolkit: Tools for standardized data collection
Genetics in Medicine -
Publication
Molecular medicine, managed care, and the moral responsibilities of patients and physicians
Journal of Medicine and PhilosophyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Methods for Promoting Public Dialogue on the Use of Residual Newborn Screening
Newborn screening (NBS) is conducted on virtually every child born in the U.S. primarily through state-based public health programs. Following testing, there is blood leftover on each child that is…- Advisory Committees
- Advocate
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- Attitude
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Publication
Sharing the glory, not the credit
ScienceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Why were NIH adverse event reporting guidelines misunderstood?
Journal of the National Cancer InstituteDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Synthetic data and ELSI-focused computational checklists-A survey of biomedical professionals' views
PLOS Digital Health -
Publication
NIH sets rules for funding embryonic stem cell research
ScienceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
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Publication
Ethical and legal reflections on secondary research using genetic data acquired for criminal investigation purposes
Forensic Science International: Genetics