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Additional Resource
BRCA Gene Patenting Case
Historical materials relating to Association of Molecular Pathology v. Myriad Genetics (“the Myriad Case”) on gene patents. These materials were created under the NHGRI-funded Duke Center of…- Duke University Center for Public Genomics
- Duke Center for Public Genomics
- CpG
- Center of Excellence in Ethical, Legal, and Social Implications (ELSI) Research
- CEER
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Publication
Newborn screening knowledge and attitudes among midwives and out-of-hospital-birth parents
J Perinat Neonatal NursUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Research participants' preferences for hypothetical secondary results from genomic research
J Genet CounsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): R21 HG006596, R01 HG006600, P50 HG007257, UL1 TR000040, UL1 RR024156 -
Publication
Rare disease 101: An online resource teaching on over 7000 rare diseases in one short course
Orphanet Journal of Rare Diseases -
Grant Abstract
Public Perspectives and Experience Regarding Genetic Ancestry Testing
Personal genetic and genomic information is becoming more widely available and affordable, generating increased discussions on the merits and dangers of direct-to-consumer (DTC) genetic testing and…- Advocacy
- Affect
- Attention
- Attitude
- Awareness
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Grant Abstract
Web-Based IRB Data Management and Archiving System
Funds are requested to license and adapt the Baylor Research and Assurances Information Network (BRAIN) for use at the University of Maryland Baltimore. BRAIN is an online system for creating,…- Archives
- Clinical Research
- data management
- education evaluation /planning
- health science research support
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Publication
A behavior-theoretic evaluation of values clarification on parental beliefs and intentions toward genomic sequencing for newborns
Social Science and Medicine -
Publication
Genetic counseling students' use of patient-centered communication skills predicts standardized patient satisfaction during virtual simulated sessions
Journal of Genetic Counseling -
Additional Resource
Consensus Study Report, Society's Choices: Social and Ethical Decision Making in Biomedicine, the National Academies of Sciences, Engineering, and Medicine (NASEM) (1995)
This National Academies Press publication documents the evidence-based findings, conclusions, and recommendations of a committee of experts on the functions of institutional review boards, the role…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Challenges and recommendations to increasing the use of exome sequencing and whole genome sequencing for diagnosing rare diseases in Brazil: An expert perspective
International Journal for Equity in Health