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Publication
The meaning of informed consent: Genome editing clinical trials for sickle cell disease
AJOB Empirical Bioethics -
Publication
Misrepresenting race — The role of medical schools in propagating physician bias
New England Journal of MedicineAmutah and colleagues examined the preclinical medical curriculum at one institution and identified five domains in which medical educators misrepresented race. -
Publication
Pathways and barriers to genetic testing and screening: Molecular genetics meets the "high risk family"
Institute for the Study of Social Change, University of California Berkeley -
Publication
Ethical issues associated with conducting genetic family studies of complex disease
Ann Epidemiol -
Video
ELSIcon2024: Exploring Ethical Dialogues in genomics research: A Qualitative Analysis of the Drama of DNA Method in South Africa.
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Lebogang Montewa, MPH (she/her/hers) – University of Cape Town (South Africa) This study investigated the effectiveness of two…- ELSIcon2024
- 6th ELSI Congress
- Community Engagement
- Education and public understanding of genetic science
- Return of results and incidental findings
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Video
ELSIcon2024: Incorporating Equity Considerations in Health Technology Assessment and Funding of Genome Medicine Technologies in Ontario, Canada
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Wendy J. Ungar, MSc, PhD (she/her/hers) – The Hospital for Sick Children Research Institute (Canada) Genome medicine (GM)…- ELSIcon2024
- 6th ELSI Congress
- equity and justice in genetics
- precision medicine
- Public Health
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Grant Abstract
Genetics of Common Heritable Disorders in Venezuela
The goal of the proposed research training program is to strengthen the capacity of Venezuelan scientists based at the University of Zulia to study genetics of common hereditable disorders relevant…- Bioinformatics
- Clinical Research
- cooperative study
- education evaluation /planning
- Ethics
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Publication
Should researchers offer results to family members of cancer biobank participants? A mixed-methods study of proband and family preferences
AJOB Empirical Bioethics -
Grant Abstract
Interactive ELSI Curriculum for Primary Care Residents
We propose to develop, implement, and evaluate a web-based curriculum on the ELSI related to genetics for primary care residents in internal medicine and pediatrics. Over three years, we will build a…- Clinical Research
- computer assisted instruction
- culture
- curriculum
- Decision Making
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News
A Bigger View: Ingrid Holm on Sharing Research Tools
CERA staff spoke with Ingrid A. Holm, MD, MPH, Professor of Pediatrics, Harvard Medical School, in April about two research instruments she deposited into the Research Tools Database on…- research tools