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Publication
Ethical aspects of pediatric genetic care: Testing and treatment
Pediatric Clinics of North AmericaOrmond, Blasimme, and Vayena review several ethical issues in pediatric genetic care, including those associated with unsolicited findings and surrogate decision making. -
Video
ELSIcon2022 Paper: The need to consider a priori motivations and deterrents: A systematic review of elements influencing the consent process for genetic tests from the perspective of patients.
ELSIcon2022 • Paper • May 27, 2022 Frederic Coulombe, Anne-Marie Laberge Background: Consent for genetic tests is a well-established practice. Nevertheless, there is no consensus on what specific…- Uptake of genetic testing
- Genetic testing and screening
- Paper
- Pre-Recorded
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Publication
A scoping review of guidelines for the use of race, ethnicity, and ancestry reveals widespread consensus but also points of ongoing disagreement
American Journal of Human Genetics -
Publication
A systematic review of geographical inequities for accessing clinical genomic and genetic services for non-cancer related rare disease
European Journal of Human Genetics -
Publication
What we know about effective public engagement on CRISPR and beyond
PNASScheufele and colleagues review existing modalities to engage the public in decision-making about emerging technologies and outline a pathway for effective deliberation on gene editing. -
Publication
Introducing social and ethical perspectives on gene—environment research
Sociological Methods & Research -
Publication
Patient and relative experiences and decision-making about genetic testing and counseling for familial ALS and FTD: A systematic scoping review
Alzheimer Disease & Associated Disorders -
Job Posting
Academic Scholar, Stanford Center for Biomedical Ethics (SCBE)
The Stanford Center for Biomedical Ethics in the Department of Pediatrics at Stanford University seeks an Academic Scholar with a record indicating scholarly activity in any areas related to Ethical…- ELSI
- precision medicine
- Biomedical Ethics
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Job Posting
Academic Scholar, Stanford Center for Biomedical Ethics
The Stanford Center for Biomedical Ethics in the Department of Pediatrics at Stanford University seeks an Academic Scholar with a record indicating scholarly activity in any areas related to Ethical…- ELSI
- precision medicine
- Biomedical Ethics