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Idaho 2014 State Bills (Idaho 2014 SB 1385)
Unless explicitly mandated by federal statute, a state agency, district or education institution must obtain written consent from parents or eligible students before collecting biometric records,…- state bill
- bill
- bill status died
- Idaho
- written consent
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Additional Resource
BRCA Gene Patenting Case
Historical materials relating to Association of Molecular Pathology v. Myriad Genetics (“the Myriad Case”) on gene patents. These materials were created under the NHGRI-funded Duke Center of…- Duke University Center for Public Genomics
- Duke Center for Public Genomics
- CpG
- Center of Excellence in Ethical, Legal, and Social Implications (ELSI) Research
- CEER
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Publication
Perception and knowledge of pharmacogenetics among Brazilian psychiatrists
Psychiatry Research -
Publication
Research participants' preferences for hypothetical secondary results from genomic research
J Genet CounsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): R21 HG006596, R01 HG006600, P50 HG007257, UL1 TR000040, UL1 RR024156 -
Publication
Newborn screening knowledge and attitudes among midwives and out-of-hospital-birth parents
J Perinat Neonatal NursUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Grant Abstract
Public Perspectives and Experience Regarding Genetic Ancestry Testing
Personal genetic and genomic information is becoming more widely available and affordable, generating increased discussions on the merits and dangers of direct-to-consumer (DTC) genetic testing and…- Advocacy
- Affect
- Attention
- Attitude
- Awareness
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Publication
Rare disease 101: An online resource teaching on over 7000 rare diseases in one short course
Orphanet Journal of Rare Diseases -
Grant Abstract
Web-Based IRB Data Management and Archiving System
Funds are requested to license and adapt the Baylor Research and Assurances Information Network (BRAIN) for use at the University of Maryland Baltimore. BRAIN is an online system for creating,…- Archives
- Clinical Research
- data management
- education evaluation /planning
- health science research support