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A Prospectus on Ethical Issues in the Context of Collaborations Between Academic and Non-academic Institutions on Genetics Research
Emily Bullis, MA and Anjali Shastri, PhD - 23andMe ELSIconversations - February 26, 2021 Genetics research has been far from equitable in terms of engaging representative numbers of participants of…- Direct to Consumer Genetic Testing
- Underrepresented Groups
- Genetic Research
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Publication
Genetic label and long-term-care policies: A winning or losing proposition for patients?
Saint Louis University PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
From destiny to freedom? On human nature and liberal eugenics in the age of genetic manipulation
SpringerDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
In the Media
Ambiguous genetic test results can be unsettling. Worse, they can lead to needless surgeries
The Washington Post |Christina Bennett- consumer genetic testing
- Variants of Uncertain Significance
- clinical genetics
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Publication
Against "genetic dis-enhancement": An argument for a substantive restriction on the right to reproductive autonomy
Philosophy Documentation CenterDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
How legal frameworks construct patterns of liability in genetic counselling: An international perspective
Ashgate Pub.Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Gene transfer in sports: An opening scenario for genetic enhancement of normal "human traits"
Elsevier Academic PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Obtaining informed consent for clinical tumor and germline exome sequencing of newly diagnosed childhood cancer patients
Genome MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): 1U01HG006485 -
Publication
Laboratory policies and practices for the genetic testing of children: A survey of the Helix network
Am J Hum Genet