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Video
ELSIcon2022 Flash: An Exploration of Family Connection and African Ethnic Identity Development Among African Americans Finding African Genetic Relatives While Using Consumer Genetic Genealogy Services
ELSIcon2022 • Flash • May 27, 2022 LaKisha David African Americans generally lack awareness of their ancestral family history due to the forced displacement of their ancestors during the…- Relative finding/matching
- identity
- Flash
- Pre-Recorded
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Video
ELSIcon2022 Panel: Ethical, Clinical, Legal, and Economic Issues Surrounding Genetic Variant Reinterpretation
ELSIcon2022 • Panel • June 3, 2022 Paul Appelbaum, Wendy Chung, Gary Marchant, Jose Pagan The knowledge base for interpreting genetic variants changes as new cases are reported, population…- Live
- Panel
- return of results
- Genetic testing and screening
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Grant Abstract
Use of Genetic Information by Life, Long-term Care, and Disability Insurers: Exploring International Lessons, the Domestic Legal
This project employs multiple methods and a transdisciplinary approach to explore policy options for US federal and state governments seeking to address how life, long-term care, and disability…- Advocacy
- Affect
- Area
- Australia
- Case Study
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Video
ELSIcon2022 Paper: The Role of Patient Advocacy Groups Following Prenatal Diagnosis of a Genetic Condition
ELSIcon2022 • Paper • May 27, 2022 Kaitlynn Craig, Marsha Michie, Kirsten Riggan Little research has been conducted to support the a priori claim that prenatal genetic testing is justified by the…- Genetic Counseling
- Paper
- Pre-Recorded
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Additional Resource
Case Western Reserve University Center for Genetic Research Ethics and Law (CGREAL)
Patricia Marshall, Richard Sharp, & Eric Juengst were Principal Investigators of the Case Western Reserve University Center for Genetic Research Ethics and Law (CGREAL). This center studied…- CEER
- human subjects protections
- patient perspectives
- informed consent
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Publication
American College of Medical Genetics position statement on gene patents and accessibility of gene testing
Genetics in MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
The human drama of genetics: 'Hard' and 'soft' media representations of inherited breast cancer
Sociology of Health & IllnessDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
False criticisms of sociobiology and behavioral ecology: Genetic determinism, untestability, and inappropriate comparisons
Politics and The Life SciencesDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Religious leaders' attitudes and beliefs about genetics research and the Human Genome Project
Journal of Clinical EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…