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Grant Abstract
Center for ELSI Research on Psychiatric Neurologic and Behavioral Genetics
Research on the genetics of Psychiatric, Neurologic, and Behavioral (PNB) phenotypes reveals a panorama of complexity that creates several challenges: 1) the data are difficult for clinicians to…- Affect
- Area
- base
- Behavior Disorders
- Behavioral
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Publication
Experiences among women with positive prenatal expanded carrier screening results
J Genet CounsUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Video
ELSIcon2022 Flash: Patients’ expectations of benefits from large-panel genomic tumor testing in rural community oncology practices
ELSIcon2022 • Flash • June 3, 2022 Eric Anderson, Paul Han Large-panel genomic tumor testing (GTT) is a new technology that promises to make cancer treatment more precise. However, GTT also…- Live
- Flash
- Uptake of genetic testing
- Genetic testing and screening
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Publication
Science literacy in the age of (dis)Information: A public health concern
Academic Medicine -
Additional Resource
Missouri 2016 State Bills (Missouri 2016 SB 989 )
Requires state education agencies to obtain parental consent to collect biometric records from parents, K-12 students or through data sharing agreements with any other entity. Biometric records are…- state bill
- bill
- bill status died
- Missouri
- genetic privacy
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Publication
Teaching about cystic fibrosis carrier screening by using written and video information
The American Journal of Human Genetics -
Additional Resource
Delaware 2015 State Bills (Delaware 2015 SB 79)
Requires the Department of Education to promulgate rules and regulations relating to the privacy and protection of student data, including DNA or other genetic material. Senate Substitute Version…- state bill
- bill
- Delaware
- Department of Education
- Privacy
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Publication
Forging the path to precision medicine in Qatar: A public health perspective on pharmacogenomics initiatives
Frontiers in Public Health -
Publication
"Black Lives Matter and Black Research Matters": The African Society of Human Genetics' call to halt racism in science
Molecular Biology of the CellWonkam and colleagues present five key points for addressing neocolonial, racist practices in genomic research, including recognizing African-led contributions to science of the present and the past. -
Additional Resource
Glossary of Genomics Terms, The Journal of the American Medical Association (JAMA)
The Journal of the American Medical Association produced this Glossary of Genomics Terms in 2013. The glossary includes terms commonly used in the study of genetics compiled using information…- genetic terms glossary
- glossary
- JAMA
- learning tool
- genomic terms