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"What We Will Do with Your Data and Samples," Video for American Indian and Alaska Native Participants, All of Us Research Program (Spanish Version)
"What We Will Do with Your Data and Samples" is a 1 minute and 43 second video, created by the All of Us Research Program (All of Us) , that informs American Indian and Alaska Native… -
Publication
Benefit sharing: It's time for a definition
Journal of Medical EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Boosting health services research
ScienceDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Developing policy infrastructure to guide genomics-informed oncology nursing in Canada: An interpretive descriptive study
Canadian Journal of Nursing Research -
Publication
Women in developing countries and benefit sharing
Developing World BioethicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
Polygenic Risk Methods in Diverse Populations (PRIMED) Consortium
The Polygenic Risk Methods in Diverse Populations (PRIMED) Consortium (comprised of NIH program staff, affiliate members, investigators at 7 study sites, and a Coordinating Center) is funded by the…- Polygenic risk scores
- precision medicine
- diversity
- Genetic Risk
- multi-site
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Publication
Harm, hype and evidence: ELSI research and policy guidance
Genome MedicineDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Using visual storytelling to share aggregate findings with families participating in clinical genomics research
Genetics in Medicine Open