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Publication
Genomic testing in Low- and Middle-Income Countries (LMIC)
European Journal of Human Genetics -
Publication
The public perception of the #GeneEditedBabies event across multiple social media platforms: Observational study
Journal of Medical Internet Research -
Collection
Dataveillance and Human Rights
Nearly 75 years ago, countries agreed to an International Bill of Human Rights, that included, among other fundamental rights, a right to privacy, a right to science, and a right to health. Cohesive…- data privacy
- data justice
- public health surveillance
- HIPAA
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Grant Abstract
Family as Context for Clinical Genetics
The Family as Context in Clinical Genetics Project (FCCGP) is an innovative Web-based curriculum that focuses on the integration of the new genetic knowledge into clinical practice and uses the… -
Job Posting
Associate Professor; Assistant Professor, Health Humanities & Bioethics
The Department of Health Humanities & Bioethics in the University of Rochester School of Medicine and Dentistry (URSMD) seeks to recruit a faculty member (open rank) for a tenure eligible…- Health Humanities
- Bioethics
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Collection
Empirical Evaluation of Arts-Based Informational Aids for ELSI Issues in the Clinic and Beyond
The rapidly changing science of clinical genetics and the complexity of its associated ethical, legal, and social (ELSI) issues call for novel approaches to information delivery and education of…- Genetics education
- popular culture
- science education
- Arts
- Informational aids
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News
New Special Report of the Hastings Center Report
We are pleased to announce the publication of a new Hastings Center Report, special report, "Envisioning a More Just Genomics". The report, a collaboration between The Hastings… -
Grant Abstract
Exploring Population Concepts in Multiethnic Gene-Environment Interaction Studies
The proposed project explores how researchers in the new and growing arena of gene- environment interaction (GxE) research operationalize the concept of "a human population." The proposed…- African American
- Applications Grants
- Attention
- Awareness
- base
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Collection
The Disability Rights Critique of Technologies that Eliminate Human Genetic Variation
The development and use of an expanding range of medical technologies that yield genetic information about embryos and fetuses has raised ethical questions about whether and how this increasingly…