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Publication
Extending the CARE Principles from tribal research policies to benefit sharing in genomic research
Frontiers in GeneticsCarroll and colleagues analyze the content of research governance documents from 26 U.S. tribal communities and recommend the addition of explicit requirements for benefit sharing. -
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Publication
Data management plans in the genomics research revolution of Africa: Challenges and recommendations
Journal of Biomedical Informatics -
Video
ELSIcon2022 Paper: Dorothy, We’re Not in dbGaP Anymore: Emerging Cloud-Based Biomedical Data and Analysis Platforms and their Implications for Data Stewardship
ELSIcon2022 • Paper • June 3, 2022 Presented by: Sarah Nelson Jacklyn Dahlquist, Stephanie M. Fullerton Individual-level genomic, environmental, and linked health outcome data are being…- Live
- Paper
- Data and data stewardship
- precision medicine
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Grant Abstract
The ethics of consent for the public release of potentially identifiable DNA data
A major ethical and policy challenge facing genomics research stems from the existing mandate for rapid public release of all sequenced DNA data. It is now clear that an individual can be uniquely…- Benefits and Risks
- Biomedical Research
- Classification
- Clinical
- clinically relevant
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Video
TraineeHub | Finding and Making Sense of NIH Funding Opportunities
"Finding and Making Sense of NIH Funding Opportunities" took place on October 3, 2023. Identifying funding opportunities at NIH that match your career and research goals can be overwhelming.…- TraineeHub Resources
- Trainees
- NIH
- Funding
- Grantsmanship
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Publication
Share and share alike: Deciding how to distribute the scientific and social benefits of genomic data
Nat Rev Genet -
Publication
Health data sharing attitudes towards primary and secondary use of data: A systematic review
eClinicalMedicine -
Grant Abstract
Genetic data partnerships: Enabling equitable access within academic/private data sharing agreements
Candidate: Kayte Spector-Bagdady, JD, MBE, is an attorney and medical ethicist focused on the governance of secondary research use of human specimens and genetic data. Her long-term career goal is to…- career
- career development
- Clinical
- clinical care
- Communities