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Publication
Bioethics of somatic gene therapy: What do we know so far?
Current Medical Research and Opinion -
Video
Key stakeholders’ moral attitudes on somatic gene editing for inherited cardiomyopathy: a qualitative interview study
ELSIcon2024 • Paper • June 12, 2024 Authors: Jannieke Simons, MA (she/her/hers) - University Medical Center Utrecht (Netherlands) Introduction: This paper aims to unravel the…- ELSIcon2024
- 6th ELSI Congress
- Gene therapies and gene editing
- precision medicine
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Publication
Patients' and caregivers' maximum acceptable risk of death for non-curative gene therapy to treat Duchenne muscular dystrophy
Molecular Genetics and Genomic Medicine -
Publication
Managing the challenges of paying for gene therapy: Strategies for market action and policy reform in the United States
Journal of Comparative Effectiveness Research -
Publication
Data sharing to advance gene-targeted therapies in rare diseases
American Journal of Medical Genetics Part C: Seminars in Medical Genetics -
Publication
Updating the ethical guidance for gene and cell therapy research participation
Molecular Therapy -
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Publication
Chinese expert consensus on the ethical review of clinical research of ophthalmic gene therapy (2022)
Zhonghua Yan Ke Za Zhi