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Grant Abstract
ELSI Biennial Congress
PROJECT NARRATIVE The goal of the biennial ELSI Congress is to provide a dedicated, regularly scheduled meeting for researchers focused on the ethical, legal and social implications of genetic and…- Address
- Affect
- American
- base
- Bioethics
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Research Tool
ELSI Research Methods Questionnaire
Cho and colleagues created this questionnaire to understand the research methodologies currently being used in the study of the ethical, legal, and social implications (ELSI) of genetics and genomics. -
Publication
A conjunctural analysis of the origins of ‘embedded ELSI’ in U.S. genomic medicine
Journal of Responsible Innovation -
Video
Genomics and Infectious Disease: Scientific and ELSI Issues of COVID
Genomics is being used in several distinct ways to understand and address the Covid-19 pandemic. Pathogen genomics investigates the genetics of the virus itself and enables identification and…- genomics and infectious disease
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Video
ELSIcon2022 Paper: Examining Embeddedness: A Call for Principles and Best Practices for Integrating ELSI
ELSIcon2022 • Paper • May 27, 2022 Jenny Reardon, Stephanie M. Fullerton, and Sandra Soo-Jin Lee Increasingly, public and private funders have come to recognize the critical significance of…- Reflections on the ELSI field
- equity and justice in genetics
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- Pre-Recorded
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Video
Advocacy and Allyship in ELSI: Opportunities and Challenges
Objectivity is a weight-bearing pillar in scientific inquiry, a norm to ensure that research and its outcomes are “value free” and unaffected by subjective value judgement. Yet ELSI research, as a…- Advocacy
- allyship
- policymaking
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Publication
Ethical, legal, and social issues related to genetics and genomics in cancer: A scoping review and narrative synthesis
Genetics in Medicine