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Grant Abstract
Building Local Capacities in Ethics Training and IRB Review in Guatemala
This application is in response to PAR-13-027, International Research Ethics Education and Curriculum Development Award. The proposed project builds on an existing relationship in biomedical research…- Administrator
- Area
- Award
- base
- Biomedical Research
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Publication
Effects of informed consent for individual genome sequencing on relevant knowledge
Clinical Genetics -
Publication
Rules of engagement: Perspectives on stakeholder engagement for genomic biobanking research in South Africa
BMC Medical Ethics -
Publication
The therapeutic odyssey: Positioning genomic sequencing in the search for a child’s best possible life
AJOB Empirical Bioethics -
Grant Abstract
Penn Center for ELSI Research in Emerging Genetic Technologies in Health Care
Most, if not all, human diseases have one or more genetic factors that contribute to cause, likelihood of occurrence, severity, and response to existing or experimental treatments. There is a general…- African American
- Age
- BRCA1 gene
- BRCA2 gene
- career
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Publication
Are physicians prepared for whole genome sequencing? A qualitative analysis
Clin GenetClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01HG006500, U19HD077671, F32HG006993, KL2TR001100 -
Publication
The therapeutic odyssey: Positioning genomic sequencing in the search for a child's best possible life
AJOB Empir BioethClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01HG007301 -
Grant Abstract
Ethics of Dissemination: Communicating with Participants about Genetics Research
Biomedical research involving humans generates results that fall on a continuum of potential interest to participants. Some results, such as blood pressure, have obvious clinical utility, and…- Alaska
- Alaska Native
- arm
- base
- Behavioral Genetics
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Additional Resource
Duke Center on Genomics, Race, Identity, Difference (GRID)
Charmaine Royal is Director of the Center on Genomics, Race, Identity, Difference (GRID) at the Social Science Research Institute, Duke University. GRID brings together collaborators and partners to…- Race
- identity
- ancestry
- Ethnicity
- tribe