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Publication
Secondary data usage in direct-to-consumer genetic testing: To what extent are customers aware and concerned?
Public Health Genomics -
News
What is the Genomics and Society Working Group at NHGRI?
The Genomics and Society Working Group (GSWG) is the oldest of four working groups established by National Advisory Council for Human Genome Research (NACHGR) (also known as “the council”) to provide… -
Grant Abstract
Ethical and Social Issues in the Study of Genetics of Complex Traits
The long-term objective of this Pathway to Independence Award (K99/ROO) is to train to become an independent researcher in bioethics with a strong interdisciplinary foundation in genetics and…- Address
- Advocacy
- Attitude
- Autistic Disorder
- Award
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Publication
Biotechnology on the RAC -- FDA/NIH regulation of human gene therapy
Food and Drug Law JournalDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Secondary research use of personal medical data: attitudes from patient and population surveys in The Netherlands and Germany
European Journal of Human Genetics -
Publication
Protecting essential information about genetic variants as trade secrets: A problem for public policy?
J Law BiosciUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
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Additional Funding Resource
The Application Submission System & Interface for Submission Tracking (ASSIST)
Use the ASSIST system to prepare and submit applications electronically to National Institute of Health (NIH) and other Public Health Service agencies and find links to the NIH Application Guide and…