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Publication
Ethical, anticipatory genomics research on human behavior means celebrating disagreement
Human Genetics and Genomics Advances -
Publication
Targeted whole exome sequencing in children with early-onset epilepsy: Parent experiences
Journal of Child Neurology -
Publication
Active-learning strategies for legal topics and substance abuse in a pharmacy curriculum
American Journal of Pharmaceutical Education -
Publication
Active-learning strategies for legal topics
and substance abuse in a pharmacy curriculumAmerican Journal of Pharmaceutical Education -
Publication
Active-learning strategies for legal topics
and substance abuse in a pharmacy curriculumAmerican Journal of Pharmaceutical Education -
Video
Affirming Sex and Gender Diversity in Genetics Practices, Policies, and Laws: A Call to Action
This ELSI Friday Forum took place on December 8, 2023. There are already many barriers to appropriate health care for transgender, gender diverse, and intersex (TGDI) communities. The recent surge…- gender diversity
- gender/sexuality
- Biomedical policy
- genetics and law
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Video
ELSIcon2022 Plenary: Ableism, Audism, Ethics, and Genetics: A Just and Equitable Deaf Future?
ELSIcon2022 • Plenary Session • June 1, 2022 Welcome and Introduction by Mildred Cho, PhD Teresa Blankmeyer-Burke, PhD: Ableism, Audism, Ethics, and Genetics: A Just and Equitable Deaf Future?…- Live
- Plenary Session
- Stigma and discrimination
- ableism
- audism
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Grant Abstract
Toward Consensus on Benefit Sharing in Genetics Research
Patient groups are becoming more active in promoting and facilitating pre-clinical and clinical research. While patient groups have long played a key role in participating in research, various groups…- Genetics
- health care policy
- health related legal
- health science research
- meeting /conference /symposium
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Video
An Exploration of Family Connection and African Ethnic Identity Development Among African Americans Finding African Genetic Relatives While Using Consumer Genetic Genealogy Services
ELSIcon2022 • Pre-recorded Flash LaKisha David, PhD - University of Pennsylvania, Postdoctoral Fellow An Exploration of Family Connection and African Ethnic Identity Development Among African…- identity
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Publication
Is germline genome-editing person-affecting or identity- affecting, and does it matter?
Bioethicsby Andrew McGee & Sinead Prince