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Publication
What we talk about when we talk about cloning: A literature and bioethics perspective on genetic privacy, consent and the family
Journal of Literature and Science -
Grant Abstract
Managing Incidental Findings in the Genomic Era
Disclosing the prospect or discovery of genomic IFs to clinical patients or prospective research subjects is an area fraught with ethical, legal, social, and practical challenges. These challenges…- Area
- Behavior
- behavior change
- Behavioral
- Bioethics
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Grant Abstract
Engaging Tribal Participation in Research through Priority Setting and Regulation
The recruitment of American Indians and Alaska Natives (AI/AN) to participate in research is complicated by a long and troubled history between researchers and Native populations of the United States…- Alaska
- Alcohols
- American Indian and Alaska Native
- American Indians
- Area
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Grant Abstract
International Research Ethics Training Program
The proposed CWRU training grant in international research ethics builds upon and expands a highly successful international research training program, funded by the Fogarty International Center for a…- Academia
- Academy
- Achievement
- Address
- Adult
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Publication
Ethical, legal, and social implications of learning health systems
Learning Health Systems -
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Grant Abstract
Ethical Issues in International Health Research
This is a project of the Harvard School of Public Health in collaboration with Tufts University Medical School; Instituto Nacional de Salud Publica, Cuernavaca, Mexico; The University of Natal School… -
News
Albert R. Jonsen, PhD (1931-2020) Foundational Scholar of Bioethics
Albert R. Jonsen, PhD (1931-2020), a foundational figure and scholar in bioethics, died at his home in San Francisco on October 21, 2020. His extraordinary contributions to the field of…- Al Jonsen
- Bioethics History
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Grant Abstract
Public Perspectives and Experience Regarding Genetic Ancestry Testing
Personal genetic and genomic information is becoming more widely available and affordable, generating increased discussions on the merits and dangers of direct-to-consumer (DTC) genetic testing and…- Advocacy
- Affect
- Attention
- Attitude
- Awareness
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Publication
Centering the patient in informatics applications
Journal of the American Medical Informatics Association