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  • Grant Abstract

    Insurance Implications of a Complete Human Genome Map

    A collaborative interdisciplinary approach will be employed to address issues of insurance and the HGP: to describe and classify the variety of screening and diagnostic techniques likely to develop;…
  • Grant Abstract

    Harmonizing Privacy Laws to Enable International Biobank Research

    In recent years, researchers from around the world have begun developing repositories of tissues and socio-demographic data for genetics and other biomedical research. These biobanks, often linked…
  • Publication

    Benefit sharing: From obscurity to common knowledge

    Developing World Bioethics
    Schroeder, Doris
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…
  • Publication

    Genetic testing, genetic medicine, and managed care

    Wake Forest Law Review
    Rothstein, Mark A., Hoffman, Sharona
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…
  • Publication

    Preventive ethics in the management of ophthalmic genetic disorders

    Seminars In Ophthalmology
    Parker, Lisa S., Gorin, Michael B.
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…
  • Publication

    The role of genetic screening in the management of hereditary malignancy

    Hormonal and Metabolic Research
    Gagel, Robert F.
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…
  • Publication

    Management of patients at high risk for breast cancer

    Blackwell Science
    Vogel, Victor G.
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…
  • Publication

    Managing reproductive pluralism: The case for decentralized governance

    Hastings Center Report
    Fossett, James W.
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…
  • Publication

    Clinical and ethical considerations in managing carrier detection

    American Journal of Public Health
    Ross, Lainie Friedman, Clayton, Ellen Wright
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…
  • Publication

    We have “gifted” enough: Indigenous genomic data sovereignty in precision medicine

    American Journal of Bioethics
    Tsosie, Krystal S., Yracheta, Joseph M., Kolopenuk, Jessica A., Geary, Janis