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Publication
Doctor's expertise and managing discrepant information from other sources and genetic counseling: A conversation analytic perspective
Journal of Genetic CounselingDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
ELSIcon2024: Differences between private, government, and consortium data stewards and their impact on genetic research with diverse ancestra
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Kayte Spector-Bagdady, JD, MBe (she/her/hers) – University of Michigan Genetic researchers must have access to databases…- ELSIcon2024
- 6th ELSI Congress
- Biobanking and genomic databases
- equity and justice in genetics
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Publication
Genetic engineering: Dream or nightmare? Turning the tide on the brave new world of bad science and big business
GatewayDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
What would you do? Specialists' perspectives on cancer genetic testing, prophylactic surgery, and insurance discrimination
Journal of Clinical OncologyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Research Tool
CSER Phase 1: Genetic Information Nondiscrimination Act (GINA) Fact Sheet: "GINA & You"
This fact sheet describes the rights protected by the Genetic Information Nondiscrimination Act of 2008 in an easy to read format. -
Publication
Genetic testing for familial breast cancer -- ethical questions concerning individual rights and social responsibility
Disease MarkersDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
How interested is the public in genetic testing for colon cancer susceptibility? Report of a cross-sectional population survey
Cancer Prevention and ControlDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
The UK's policy on genetic testing services supplied direct to the public -- Two spheres and two tiers
Community GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Women worried about their familial breast cancer risky -- a study on genetic advice in general practice
Family PracticeDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Genetics of childhood disorders: XXXVI. Stem cell research, Part 1: new neurons in the adult brain
Journal of the American Academy of Child and Adolescent PsychiatryDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…