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Publication
Quality management, ethical considerations, and emerging challenges in genomics and biobanking: A comprehensive review
Clinica Chimica Acta -
Publication
HUGO ethics committee statement on benefit sharing
Clinical GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
What are important ways of sharing power in health research priority setting? Perspectives from people with lived experience and members of the public
Journal of Empirical Research on Human Research Ethics -
Publication
Gene therapy: A speeding ticket for NIH's controversial cancer star
ScienceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
RAC defers to NIH director on some gene therapy cases
NatureDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Prenatal Testing for Genetic Disability
This project will investigate the nature of disability to articulate, for public policy, the purposes for which emerging testing capabilities ought ethically to be used. To analyze the nature of…- Alzheimer's Disease
- behavioral /social science research tag
- Caregivers
- Clinical Research
- deafness
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Publication
NIH, under fire, freezes grant for conference on genetics and crime
NatureDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Gene patents: Rumors fly over rejection of NIH claim
ScienceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…