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Publication
Literature, science, and public policy: From Darwin to genomics
Cambridge University PressThe Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG008992 -
Publication
Balancing ethics and culture: A scoping review of ethico-cultural and implementation challenges of the individual-based consent model in African research
Journal of Empirical Research on Human Research Ethics -
Grant Abstract
Family Disclosure of Cancer Risk: An Ethnographic Study
There is almost no systematic, empirical research on the topic of how information about genetic risk information travels through families, what family and cultural characteristics might impede or…- behavioral /social science research tag
- breast neoplasms
- cancer risk
- culture
- data collection methodology /evaluation
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Research Tool
Data Dictionary: Video Informed Consent Information (VICI) for Residual Newborn Specimen Research
Rothwell and colleagues developed a video and an app for obtaining consent about allowing newborn blood spots (NBS) to be used as biospecimen resources for biobanking. They conducted focus groups and… -
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Publication
Genome project: An experiment in sharing
ScienceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Knowledge sharing and 'genomic' healthcare
Nature BiotechnologyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Sharing agriculture's genetic bounty
ScienceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…