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Publication
A caution to Native American institutional review boards about scientism and censorship
JurimetricsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
National Information Resource on Ethics and Human Genetics (II)
This project will continue the activity of the National Information Resource on Ethics and Human Genetics at the Kennedy Institute of Ethics, Georgetown University. The research group will: -continue…- behavioral /social science research tag
- Catalogs
- Data Collection
- Ethics
- Genetic Screening
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Publication
Review of Kerry Lynn Macintosh, Illegal beings. Human clones and the law.
American Journal of BioethicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
Conference Proceedings, Incorporating Science, Economics, and Sociology in Developing Sanitary and Phytosanitary Standards in International Trade, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2020)
This National Academies Press publication summarizes the proceedings of a conference that explored the roles and limitations of science, economics, and sociology in designing and managing sanitary…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Public willingness to participate in and public opinions about genetic variation research: A review of literature
American Journal of Public HealthDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
The Bermuda Principles
Historical materials relating to the Bermuda Principles for genomic data sharing. These materials were created under the NHGRI-funded Duke Center of Excellence for ELSI (Ethical, Legal and Social…- Duke University Center for Public Genomics
- Duke Center for Public Genomics
- CpG
- Center of Excellence in Ethical, Legal, and Social Implications (ELSI) Research
- CEER
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Publication
Public preferences for genetic and genomic risk-informed chronic disease screening and early detection: A systematic review of discrete choice experiments
Applied Health Economics and Health Policy -
Publication
Can genomic research make a useful contribution to social policy?
Royal Society Open ScienceAsbury, McBride, and Bawn review two reports and conclude that policy makers should focus on increasing genetic literacy in the UK through public education and that scientists should continue efforts… -
Job Posting
Senior Health Science Policy Analyst
The All of Us Research Program Policy Office is seeking exceptional candidates for a Senior Health Science Policy Analyst position opening in our Ethical, Legal, and Social Implications (ELSI)Team…- Policy Analysis
- ELSI
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Additional Resource
Workshop Proceedings, Advancing Disease Modeling in Animal-Based Research in Support of Precision Medicine, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2017)
This publication summarizes the proceedings of a 2-day workshop (October 5 and 6, 2017) convened by the National Academies of Sciences, Engineering, and Medicine. The workshop examined the…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding