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ELSIcon2022 Paper: Informational Disparities in Electronic Health Records: Implications for Delivery of Hereditary Cancer Genetic Services
ELSIcon2022 • Paper • May 27, 2022 Daniel Chavez-Yenter, Xiangying Chu, Yuyu Chen, Melody S. Goodman, Kimberly Kaphingst Health system-wide approaches are needed to identify patients eligible for…- Data and data stewardship
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Selection for presymptomatic testing for huntington's disease: Who decides? A reply from the Victorian Clinical Genetics Service, Murdoch Institute, Melbourne, Australia
Journal of Medical GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
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Uniform parentage act: Ohio recognizes genetic testing's validity to rebut the presumption that the natural mother's husband is not the father--Hulett v. Hulett
University of Dayton Law ReviewDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
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Pre-employment inquiries: Drug testing, alcohol screening, physical exams, honesty testing, genetics screening--do they discriminate? An empirical study
Akron Law ReviewDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
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Genetic testing for BRCA1: Effects of a randomised study of knowledge provision on interest in testing and long term test uptake; implications for the NICE guidelines
Familial CancerDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
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Information overload? As genetic testing kits sold directly to consumers gain popularity, medical professionals and lawmakers wonder if more regulation is needed
State LegislaturesDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
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Genetic screening: Programs, principles, and research -- thirty years later Reviewing the recommendations of the Committee for the Study of Inborn Errors of Metabolism (SIEM)
Public Health GenomicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
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Genetics and criminality: The potential misuse of scientific information in court, edited by Jeffrey R. Botkin, William M. McMahon, and Leslie Pickering Francis
Journal of Psychiatry and LawDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
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Psychosocial issues following a positive result of genetic testing for BRCA1 and BRCA2 mutations: Findings from a focus group and a needs-assessment survey
CMAJ/JAMC: Canadian Medical Association JournalDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
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What do we tell the children? Contrasting the disclosure choices of two HD families regarding risk status and predictive genetic testing
Journal of Genetic CounselingDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…