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March 2025 EFF: Enhancing Genetic Screening Access through Community Partnerships in the Cleveland African American Prostate Cancer Project
Genetic screening is crucial for identifying genetic risk factors for disease, but marginalized groups often have low participation due to lack of access, awareness, and mistrust of healthcare…- community building
- Prostate Cancer
- Community resource projects
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Video
ELSIcon2022 Paper: Supporting Shared Decision Making for Parents of Infants/Young Children with Disorders/Differences of Sex Development: Creation of a Genetic Testing Decision Aid
ELSIcon2022 • Paper • June 2, 2022 Sophie Lightfoot, Melissa Gardner, Meg Carley, Larry Gruppen, Lauren Mohnach, Jodie Johnson, Dawn Stacey, David Sandberg, Kristina Suorsa-Johnson…- Live
- Paper
- tools
- Genetic testing and screening
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Publication
The opposite of a step parent - The genetics without any of the emotion: 'Sperm donors' reflections on identity-release donation and relatedness
Reproductive Biomedicine & Society Online -
Publication
European public policy on genetic modification of agricultural products and food: Lessons to be learned over balancing public health, consumer confidence and commerce
European Journal of Public HealthDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Genotype-based screening for hereditary Hemochromatosis: II. Attitudes toward genetic testing and psychosocial impact -- a report from a German pilot study
Genetic TestingDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Re-contact to advise of testing available to detect high risk for carcinoma: Response to letters sent to persons initially ascertained for other genetic reasons
American Journal of Human GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
In memoriam -- marrying art and genetics to provide an eternal memorial would be fine, says James Randerson, if only the science had some substance
New ScientistDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Comments on Morgan and King (2001): Three reasons why demographers should pay attention to evolutionary theories and behaviour genetics in the analysis of contemporary fertility
European Journal of PopulationDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Systematic follow-up and case management of the abnormal newborn screen can improve acceptance of genetic counseling for sickle cell or other hemoglobinopathy trait
Genetics in MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…