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Grant Abstract
Genetic Testing Immigration and Family Reunification: Impact on Hispanic Families
This project will address the ethical, legal and social implications of the use of genetic testing as part of US immigration procedures for family reunification. Last year, approximately two-thirds…- Address
- Advocate
- African
- Anecdotes
- Attitude
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Grant Abstract
Human Genome Hispanic Outreach Initiative
The Human Genome Hispanic Outreach Initiative will be an informal educational outreach project introducing Hispanics adults (25-49 years old) to basic science concepts, technologies, and societal…- biotechnology
- Clinical Research
- education evaluation /planning
- Ethics
- Genetic Screening
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Publication
The implementation of large-scale genomic screening or diagnostic programmes: A rapid evidence review
European Journal of Human Genetics -
Publication
Living with achondroplasia: Attitudes toward population screening and correlation with quality of life
Prenatal Diagnosis -
Publication
Clinical providers' experiences with returning results from genomic sequencing: An interview study
BMC Med GenomicsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01 HG006484, U01 HG006546, UM1HG007292, U01 HG006507, R01 HG006600, UL1 RR024156, HG200359 08, HG200387 03 -
Publication
Accepting or declining preconception expanded carrier screening: An exploratory study with 407 couples
Journal of Genetic Counseling -
Video
ELSIcon2022 Paper: Why do Primary Care Patients Pursue Genetic Testing as an Elective Clinical Service? Findings from the Sanford Chip Program
ELSIcon2022 • Paper • June 2, 2022 Jessica LeBlanc, Kurt D. Christensen, Emilie S. Zoltick, Megan Bell, Lauren N. Galbraith, Leila Jamal, Christine Y. Lu, Jennifer R. Leonhard, Dylan M. Platt,…- Live
- Paper
- Uptake of genetic testing
- Genetic testing and screening
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Publication
Rare diseases in Tanzania: A national call for action to address policy and urgent needs of individuals with rare diseases
Orphanet Journal of Rare Diseases -
Publication
Informed decision-making about prenatal cfDNA screening: An assessment of written materials
Ethics, Medicine and Public Health