Image
The topics page enables quick access to all resource types on
the platform, organized by relevance to your topic.
Popular Searches
Featured Topics
Featured Topics
9721 - 9730 of 27218 Topics
-
Publication
Ethical considerations in the collection of genetic data from critically ill patients: What do published studies reveal about potential directions for empirical ethics research?
The pharmacogenomics journalDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Quality guidelines and standards for genetic laboratories/clinics in prenatal diagnosis on fetal samples obtained by invasive procedures. An attempt to establish a common European framework for quality assessment
European Journal of Human GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Research Tool
CSER Phase 1: Assent Form: (Ages 7-14) Relatives of a Study Subjects - NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis and Research
This assent form from the NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis study is designed for the 7 - 14 year old relatives of NCGENES study participants with a genetic test… -
Research Tool
CSER Phase 1: Assent Form: (Ages 15-17) Relatives of a Study Subjects - NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis and Research
This assent form from the NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis study is designed for the adolescent (aged 15-17) relatives of NCGENES study participants with a genetic… -
Publication
Assessing genetic risks: Implications for health and social policy by Lori B. Andrews, Jane E. Fullarton, Neil A. Holtzman, and Arno G. Motulsky
American Journal of Human GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Response to "Dimensions and classification of genetic interventions in human genome" by Matthew D. Bacchetta and Gerd Richter (cq vol. 5; no. 3): Misinterpretations and misrepresentations
Cambridge Quarterly of Healthcare EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Commentary on Wim Dekker's and Marcel Olde Rokkert's: "What is a genetic disease? The example of Alzheimer's Disease", and Stephen Tyreman's: "Causes of illness in clinical practice: a conceptual exploration"
Medicine, Health Care and PhilosophyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
ELSIcon2022 Panel: Will it be easier to cure sickle cell disease through gene therapy than prevent the disease through pre-implantation genetic testing for the selection of unaffected embryos?
ELSIcon2022 • Panel • May 27, 2022 Joshua Combs, Sigal Klipstein, Jeanne O'Brien, Erin Rothwell Sickle cell disease (SCD) is an inherited hemoglobinopathy that results in a pattern of early…- Pre-Recorded
- Panel
- Access to genetic screening and therapies
- Gene therapy and gene editing
-
News
How Does Genetic Ancestry Testing Affect Perceptions of Race? Wendy Roth and Ariela Schachter Share Insights and Research Tools from New Study
Genetic Ancestry Testing (GAT) has rapidly grown in popularity. In 2022, an estimated one-in-five U.S. adults, approximately 50 million Americans, reported using a mail-in DNA testing service. As…