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Publication
Custom policy for "custom kids"? What oversight -- if any -- should there be for reproductive technologies? Looking right into the eye of this policy storm is the Genetics and Public Policy Center
TrustDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
News
ELSI-related Presentations at ASHG 2021
ASHG Annual Meeting • Oct 18-22, 2021 Please email [email protected] with any questions or to add any missing talks All times are in Eastern Time Awards Congratulations to all the 2021…- ELSI
- ASHG
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Publication
Speaking with a forked tongue in the global debate on traditional knowledge and genetic resources: Are U.S. intellectual property law and policy really aimed at meaningful protection for Native American cultures?
Fordham Intellectual Property, Media and Entertainment Law JournalDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Genetic ties and the family: The impact of paternity testing on parents and children edited by Mark R. Rothstein, Thomas H. Murray, Gregory E. Kaebnick, and Mary Anderlik Majumber
Ethics and MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
Will it be easier to cure sickle cell disease through gene therapy than prevent the disease through pre-implantation genetic testing for the selection of unaffected embryos?
ELSIcon2022 • Pre-recorded Flash Jeanne O'Brien, MD, MSc - Shady Grove Fertility, Rockville MD Sigal Klipstein, MD - InVia Fertility Specialists Joshua Combs - Eunice Kennedy Shriver National…- gene therapy
- Gene Editing
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Publication
How does the mode of inheritance of a genetic condition influence families? A study of guilt, blame, stigma, and understanding of inheritance and reproductive risks in families with X-linked and autosomal recessive diseases
Genetics in MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
ELSIcon2022 Late-Breaking: Is a gene running in your family? Perceptions of responsibility to inform relatives about genetic cancer predisposition and risk management: an in-depth qualitative Swiss-Korean comparative analysis
ELSIcon2022 • Networking Session • Late-breaking Abstracts • May 31, 2022 Monica Aceti This study examines the different meanings of responsibility to disclose to family about genetic…- Live
- Networking Session
- Late-breaking Abstracts
- Disclosure of genetic risk information to relatives
- Genetic Counseling