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Publication
Mining the human genome after Association for Molecular Pathology v. Myriad Genetics
Genet MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01HG006507, U01HG007307 -
Publication
Patients’ and members of the public’s wishes regarding transparency in the context of secondary use of health data: Scoping review
Journal of Medical Internet Research -
Video
Sexual and Gender Minorities’ Perspectives on Genetic Privacy and Identity in Research
Catherine Hammack-Aviran, MA, JD - Vanderbilt University Medical Center ELSIconversations - March 5, 2021 Sexual orientation and gender identity minorities (SGMs) suffer significant health…- genetic privacy
- Minority Groups
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Publication
The unleashing of genetic terminology: How genetic counselling mobilizes for risk management
New Genetics and SocietyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Implementation and Implications of Sickle Cell Trait Screening in the NCAA
In 2010 the National Collegiate Athletic Association (NCAA) adopted a mandatory sickle cell trait (SCT) screening policy for student-athletes in its Division I (DI) colleges and universities.…- Adopted
- Affect
- African American student
- Area
- Athletic
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Publication
Engineering biology and climate change mitigation: Policy considerations
Nature Communications -
Collection
Ethical Challenges in Obtaining Informed Consent for Genetic/Genomic Research
Obtaining informed consent (IC) for genetic/genomic research is complicated because most of the ethical issues associated with genetic research are considerations to be disclosed by researchers and…- Informed Consent
- Genetic Research
- research oversight
- Broad Consent
- Communication
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Publication
Pandora's box exposed: Untangling the web of the double helix in light of insurance and managed care
DePaul Law ReviewDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Charting the ethical frontier in newborn screening research: Insights from the NBSTRN ELSI researcher needs survey
Int J Neonatal Screen