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Publication
What do the various principles of justice mean within the concept of benefit sharing?
Journal of Bioethical Inquiry -
Video
ELSIcon2022 Paper: Neglected ELSI in Biobanking: Addressing Issues of Governance, Stewardship, and Equity
ELSIcon2022 • Paper • June 3, 2022 Roselle Ponsaran, Kyle B. Brothers, Aaron Goldenberg, Jean Cadigan The promotion of precision medicine has led to increased interest in larger collections…- Live
- Paper
- equity and justice in genetics
- Data and data stewardship
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Publication
Teaching resources for genetics
Nat. Rev. Genet.Duke University Center for Public Genomics. Grant number(s): P50HG003391 -
Video
ELSIcon2022 Panel: Innovating Equitable Communication Modalities for Patient Activation and Cascade Testing for Familial Hypercholesterolemia: Cases of Ethical, Legal, and Social Complexities from a Pragmatic Trial
ELSIcon2022 • Panel Session • May 27, 2022 Gemme Campbell-Salome, Amy Sturm, Kelly Morgan, Eric Tricou Cascade testing of at-risk relatives can be an effective way to identify individuals…- Pre-Recorded
- Panel
- Disclosure of genetic risk information to relatives
- Genetic testing and screening
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Publication
Lay people's understanding of and preference against the word 'mutation'
Am J Med Genet A -
Publication
Bioethics, (funding) priorities, and the perpetuation of injustice
American Journal of Bioethics -
Publication
Experiences of pediatric cancer patients (age 12–18 years) with extensive germline sequencing for cancer predisposition: A qualitative study
European Journal of Human Genetics -
Publication
Experiences of pediatric cancer patients (age 12-18 years) with extensive germline sequencing for cancer predisposition: A qualitative study
European Journal of Human Genetics