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Video
New Models for Ethical AI in Precision Medicine: Empirical and Normative ELSI Inquiry
The convergence of genomics, information sciences and Electronic Health Records is a main driver of precision medicine (PM). A common feature of definitions of PM is the use of big data for… -
Video
ELSIcon2022 Panel: The Impact of Receipt of Genetic Test Results for Autism
ELSIcon2022 • Panel Session 16 • June 2, 2022 Julia Wynn, Paul Appelbaum, Robert Klitzman, Erik Parens Understanding of the genetic etiology of autism has expanded and the decreasing cost and…- Live
- Panel
- Genetic testing and screening
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Video
A Prospectus on Ethical Issues in the Context of Collaborations Between Academic and Non-academic Institutions on Genetics Research
Emily Bullis, MA and Anjali Shastri, PhD - 23andMe ELSIconversations - February 26, 2021 Genetics research has been far from equitable in terms of engaging representative numbers of participants of…- Direct to Consumer Genetic Testing
- Underrepresented Groups
- Genetic Research
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Video
ELSIcon2022 Panel: Development of a Consortium on Best Practices Related to Genomics and Adoption
ELSIcon2022 • Panel Session 6 • June 1, 2022 Kelly East, Thomas May, Marsha Michie, Crystal Smith The 'Genomics & Adoption Symposium'; a consensus project on best practices and appropriate…- Live
- Panel
- Relative finding/matching
- Genetic testing and screening
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Video
ELSIcon2022 Paper: Exploring Disparities and Equity Across the Newborn Screening System
ELSIcon2022 • Paper • June 1, 2022 Aaron Goldenberg, Beth Tarini, Natasha Bonhomme, Amy Gaviglio As with much of society, public health and medicine have been called to examine and act on…- Live
- Paper
- Population screening and public health genomics
- Genetic testing and screening
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Video
ELSIcon2022 Paper: Dorothy, We’re Not in dbGaP Anymore: Emerging Cloud-Based Biomedical Data and Analysis Platforms and their Implications for Data Stewardship
ELSIcon2022 • Paper • June 3, 2022 Presented by: Sarah Nelson Jacklyn Dahlquist, Stephanie M. Fullerton Individual-level genomic, environmental, and linked health outcome data are being…- Live
- Paper
- Data and data stewardship
- precision medicine
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Video
ELSIcon2022 Paper: The Biologization of Morality: Criminal Justice as a Matter of Public Health
ELSIcon2022 • Paper • May 31, 2022 Zachary Ascherl A growing wealth of literature explains criminal behavior in terms of its environmental, neurological, and genetic causes. Legal practitioners…- Live
- Paper
- Emerging technologies - public opinion and policy
- Law, regulation, and governance
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Video
ELSIcon2022 Panel: Privacy and utility of genetic testing among families with hereditary cancers living in three countries: The International Cascade Screening experience
ELSIcon2022 • Panel 5 • May 31, 2022 Silvia Barnoy, Efrat Dagan, Sue Kim, Maria Caiata-Zufferey, Maria Katapodi Hereditary breast and ovarian cancer (HBOC) and Lynch syndrome (LS) are monogenic…- Live
- Panel
- Disclosure of genetic risk information to relatives
- equity and justice in genetics
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Video
Autism Genomics Research: Parents’ Views on Genetic Results and Autistic Representation
ELSI Friday Forum • March 11, 2022 Decades of research into the genetics of autism suggest that genes play a significant but also complex role in autism. Studies of the experience of families…- autism
- autistic representation
- autistic genomics research
- genetic diagnosis
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Video
ELSIcon2022 Flash: INSIGHT @ Work: An Interdisciplinary Study on the Ethical, Legal and Social, Implications (ELSI) of Voluntary Workplace Genomic Testing (wGT)
ELSIcon2022 • Flash • May 27, 2022 Alyx Vogle, Betty Cohn, Rebecca Ferber, Kerry Ryan, Gregory Feero, Debra Mathews, Anya Prince, Kayte Spector-Bagdady, Kunai Sanghavi, Wendy Uhlmann, Charles Lee…- Pre-Recorded
- Flash
- Stigma and discrimination
- Genetic testing and screening