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Publication
Reflections on the cost consequences of the new gene technology for health policy
International Journal of Technology Assessment In Health CareDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
A review of economic issues for gene-targeted therapies: Value, affordability, and access
American Journal of Medical Genetics, Part CGarrison and colleagues summarize three economics-related working group presentations at the 2021 National Center for Advancing Translational Sciences virtual conference and discuss important… -
Publication
Gene therapy and ethics
Uppsala UniversityDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Somatic gene therapy research in pediatric populations: Ethical issues and guidance for operationalizing early phase trials
Pharmaceutical Medicine -
Video
Fair Access and Equity of Individualized Interventions for Ultrarare Genetic Conditions
This ELSI Friday Forum took place on September 8, 2023. Since application of the first individualized therapy in 2019, development of these bespoke treatments has expanded rapidly. Individualized…- Ultrarare Diseases
- N-of-1
- Individualized Therapies
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Video
ELSIconversations ELSICon2022: Access to Genetic Screening and Therapies: Case Study of Sickle Cell Disease
Co-Moderators: Liza Johnson, MD, MPH, MSB & Mildred Cho, PhD Presenters: Jeanne O'Brien, MD, MSc & Joshua Combs, MD, FACOG Link to pre-recorded video: Will…- Genetic Screening
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Publication
Guidance for human somatic cell therapy and gene therapy
Human Gene TherapyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Gene pill patents a surprise for gene therapy
Nature BiotechnologyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Canavan gene therapy protocol
ScienceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…