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Video
Sexual and Gender Minorities’ Perspectives on Genetic Privacy and Identity in Research
Catherine Hammack-Aviran, MA, JD - Vanderbilt University Medical Center ELSIconversations - March 5, 2021 Sexual orientation and gender identity minorities (SGMs) suffer significant health…- genetic privacy
- Minority Groups
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Video
Direct-to-Consumer Genetic Testing: Public Perspectives and Considerations Regarding Ancestry and Kinship
Catherine Hammack-Aviran, MA, JD - Vanderbilt University ELSIconversations - April 2, 2021 Direct-to-consumer (DTC) genetic testing is transforming how people view their individual, familial, and…- direct-to-consumer genetic testing
- ancestry
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Video
Affirming Sex and Gender Diversity in Genetics Practices, Policies, and Laws: A Call to Action
This ELSI Friday Forum took place on December 8, 2023. There are already many barriers to appropriate health care for transgender, gender diverse, and intersex (TGDI) communities. The recent surge…- gender diversity
- gender/sexuality
- Biomedical policy
- genetics and law
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Video
ELSIhub Introduction & Walkthrough
This is an introduction and walkthrough to ELSIhub. Take a look to see what incredible features this portal offers the ELSI community! Timestamps: Welcome to ELSIhub 0:00 Searching…- ELSIhub Introduction
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Video
ELSIconversations ELSICon2022: Stakeholder Perspectives on Data Sharing and Privacy
Co-Moderators: Vasiliki N. Rahimzadeh, PhD; Sara Ackerman, PhD, MPH; & Sandra Soo-Jin Lee, PhD Presenters: Karen Meagher, PhD, Alyx Vogle, MS CGC, & LaKisha David,… -
Video
ELSIcon2022 Plenary: Ableism, Audism, Ethics, and Genetics: A Just and Equitable Deaf Future?
ELSIcon2022 • Plenary Session • June 1, 2022 Welcome and Introduction by Mildred Cho, PhD Teresa Blankmeyer-Burke, PhD: Ableism, Audism, Ethics, and Genetics: A Just and Equitable Deaf Future?…- Live
- Plenary Session
- Stigma and discrimination
- ableism
- audism
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Video
ELSIcon2022 Paper: The Role of Patient Advocacy Groups Following Prenatal Diagnosis of a Genetic Condition
ELSIcon2022 • Paper • May 27, 2022 Kaitlynn Craig, Marsha Michie, Kirsten Riggan Little research has been conducted to support the a priori claim that prenatal genetic testing is justified by the…- Genetic Counseling
- Paper
- Pre-Recorded
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ELSIcon2022 Panel: Disability Justice and Precision Medicine Across the Lifespan: Towards a Future of Equity and Access
ELSIcon2022 • Panel • June 3, 2022 Kevin Mintz, David Wasserman, Leslie Francis, and Andrew Peterson This interdisciplinary panel will advance the dialogue between disability communities and those…- Live
- Panel
- Stigma and discrimination
- precision medicine
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Video
A Prospectus on Ethical Issues in the Context of Collaborations Between Academic and Non-academic Institutions on Genetics Research
Emily Bullis, MA and Anjali Shastri, PhD - 23andMe ELSIconversations - February 26, 2021 Genetics research has been far from equitable in terms of engaging representative numbers of participants of…- Direct to Consumer Genetic Testing
- Underrepresented Groups
- Genetic Research
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Video
ELSIcon2022 Paper: Toward an anthropology of rare disease
ELSIcon2022 • Paper • May 27, 2022 Meghan Halley, Colin Halverson, Marsha Michie Rare genetic diseases affect an estimated 330 million individuals worldwide. These patients often struggle to…- Lived experience of genetic conditions
- equity and justice in genetics
- Paper
- Pre-Recorded