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Grant Abstract
Respect for Persons in the Genomics Research Enrollment Process: Incorporating Diverse Experiences and Attitudes
PROJECT NARRATIVE This project will identify ways to demonstrate respect to prospective research participants that incorporate the perspectives of diverse patient populations who have been…- Advisory Committees
- Asians
- Attitude
- Award
- base
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Grant Abstract
Increasing confidence and changing behaviors in primary care providers
Primary care physicians have almost no training in genetics, nor in the ethical, legal and social implications (ELSI) of genetic testing, diagnosis and therapy. Further, mere provision of curricular…- Advertisements
- Affect
- arm
- Attitude
- base
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Grant Abstract
Respect for Persons in the Genomics Research Enrollment Process: Incorporating Diverse Experiences and Attitudes
Stephanie Kraft, JD, is an Acting Instructor in the Division of Bioethics, Department of Pediatrics, University of Washington School of Medicine. She has a background in law and economics and has…- Advisory Committees
- Asians
- Attitude
- Award
- base
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Grant Abstract
The ELSI Program: Evidence of Policy Impact
The Ethical, Legal and Social Implications (ELSI) Programs of the National Institutes of Health and Department of Energy were established to address ethical and related issues raised by the Human…- Appearance
- Area
- Case Study
- Communities
- Data
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Grant Abstract
Probing Minority Views on Genetic Testing and Research
Probing Minority Views on Genetic Testing and Research Grant # F31HG004124 Grant period: 08/23/2006 - 08/22/2009 Minorities, particularly African Americans and Hispanics, are under-represented when…- Africa
- African American
- Area
- Attitude
- base
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Grant Abstract
Ethical Legal and Social Implications Issues in Comparative Effectiveness Research
Two major forces in clinical medicine on the horizon are expected to change the paradigm of clinical care. One is personalized genomic medicine (PGM), which seeks to harness knowledge about the…- Alternative Therapies
- clinical care
- Clinical Medicine
- clinical practice
- Communities
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Grant Abstract
Interactive Multimedia and Biorepository Informed Consent
The long-term goal of this research is to develop multimedia technology and interactive instructional strategies to improve the effectiveness and efficiency of obtaining informed consent for human…- animation
- base
- Benefits and Risks
- biobank
- Bioethics
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Grant Abstract
Implementation and Implications of Sickle Cell Trait Screening in the NCAA
PROJECT NARRATIVE The proposed study will use surveys and in-depth interviews from National Collegiate Athletic Association (NCAA) athletes and their parents to determine the extent and nature of…- Address
- Adolescent
- Adopted
- Adult
- Affect
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Grant Abstract
Enhancing Diversity among Future ELSI Researchers
The proposed R25 Research Education Program is devoted to building a 15-month research mentorship program at the Johns Hopkins Berman Institute of Bioethics (BI) for students from diverse,…- Area
- Baltimore
- Bioethics
- career
- cohort
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Grant Abstract
Genetics and genomic research in Uganda: Towards context specific ethics guidelines
The overall goal of this proposed project is to systematically develop culturally appropriate model ethics guidelines for conducting genetics and genomics research (GGR) in Uganda. This goal will be…- Africa
- Africa South of the Sahara
- authority
- Awareness
- Bioethics