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  • NIH Jan 14, 2019 | K01

    Respect for Persons in the Genomics Research Enrollment Process: Incorporating Diverse Experiences and Attitudes

    Principal Investigator(s): KRAFT, STEPHANIE A;

    Institution: Seattle Children's Hospital

    FOA Number: PA-18-363

    Abstract

    PROJECT NARRATIVE This project will identify ways to demonstrate respect to prospective research participants that incorporate the perspectives of diverse patient populations who have been historically underrepresented in research. Demonstrating respect in a way that is meaningful to patients from diverse backgrounds has the potential to contribute positively to trusting, collaborative investigator-participant partnerships and to increase recruitment and retention in both the short term and the long term. By building such partnerships, investigators can increase diversity in genomics research, ultimately producing more generalizable and impactful research findings and reducing health disparities.

    FUNDING AGENCY:

    Funder:
    NIH

    Institute:
    NATIONAL HUMAN GENOME RESEARCH INSTITUTE

    Funding Type:
    K01

    Project Number:
    K01HG010361

    Start Date:
    Jan 14, 2019

    End Date:
    Dec 31, 2023

    PROJECT TERMS:

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