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News
ELSI in Action: Eight Presentations from the ELSI Virtual Forum
The ELSI Virtual Forum, held online in June 2020, presented eight of the talks planned for the 2020 ELSI Congress, sadly canceled due to the pandemic. The recorded presentations are now… -
Grant Abstract
Disability, diversity and trust in precision medicine research: stakeholdersengagement
Project Narrative Studies suggest that distrust is a major barrier for participation of minorities in Precision Medicine Research (PMR), though no study has examined the sources of (dis)trust and…- Adult
- Affect
- African American
- Alaska Native
- American Indians
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Grant Abstract
Disability, diversity and trust in precision medicine research: stakeholders engagement
Project Narrative Studies suggest that distrust is a major barrier for participation of minorities in Precision Medicine Research (PMR), though no study has examined the sources of (dis)trust and…- Adult
- Affect
- African American
- Alaska Native
- American Indians
-
Event
ELSI Friday Forum |Patients as Partners in Sickle Cell Disease Research in Africa: Ethos, Challenges and Lessons Learned
Join us on Friday, May 10, 2024, for the next ELSI Friday Forum: Patients as Partners in Sickle Cell Disease Research in Africa: Ethos, Challenges and Lessons Learned, with speakers: Ms. Arafa… -
Publication
Exploring attitudes, beliefs, and communication preferences of Latino community members regarding BRCA1/2 mutation testing and preventive strategies
Genetics in MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Informed Consent and Data Access Issues in State-based Biobanks
The ethical, legal, and social issues (ELSI) underlying the development and implementation of state-sponsored birth cohort studies and their accompanying biobanks are complex and potentially volatile…- Adult
- Affect
- Anxiety
- Area
- Attitude
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Publication
Including digital sequence data in the Nagoya protocol can promote data sharing
Trends in Biotechnology -
Publication
Community concerns about genetic discrimination in life insurance persist in Australia: A survey of consumers offered genetic testing
European Journal of Human Genetics -
Video
ELSIcon2022 Panel: What Can Intersectionality Bring to ELSI?: Transforming Theory into Practice
ELSIcon2022 • Panel Session 8 • June 1, 2022 Daphne Martschenko, Lucas Matthews, Maya Sabatello, Krystal Tsosie In theory, the study of Ethical, Legal, and Social Implications (ELSI) of…- Live
- Panel
- Reflections on the ELSI field
- equity and justice in genetics