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Grant Abstract
Societal Impact of Human Genetic Engineering
The purpose of this project is to develop models for broad-based community dialogue to examine the value and ethical dimensions of emerging technologies in applied human genetics. The project will be…- curriculum
- Ethics
- genetic disorder
- genetic manipulation
- human population genetics
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Publication
Rethinking benefit and responsibility in the context of diversity: Perspectives from the front lines of precision medicine research
Public Health Genomics -
Publication
Rethinking benefit and responsibility in the context of diversity: Perspectives from the frontlines of precision medicine research
Public Health Genomics -
Publication
A systematic review of geographical inequities for accessing clinical genomic and genetic services for non-cancer related rare disease
European Journal of Human Genetics -
Publication
Stakeholder perspectives on returning nonactionable apolipoprotein L1 (APOL1) genetic results to African American research participants
Journal of Empirical Research on Human Research Ethics -
Grant Abstract
Public Perspectives and Experience Regarding Genetic Ancestry Testing
Personal genetic and genomic information is becoming more widely available and affordable, generating increased discussions on the merits and dangers of direct-to-consumer (DTC) genetic testing and…- Advocacy
- Affect
- Attention
- Attitude
- Awareness
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Grant Abstract
Genetic Privacy and Identity in Sexual and Gender Minorities: GetPrISM
Sexual and gender minorities (SGMs) experience significant disparities in health and health care. These inequities result from complex interactions among social, political, environmental, and genomic…- Academic Medical Centers
- Address
- Advocate
- Affect
- Attitude
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Grant Abstract
Center for Genetic Research, Ethics, and Law (CGREAL)
The mission of the proposed Center for Genetics Research Ethics and Law (CGREL) is to foster sustained interdisciplinary research on the ethical, legal, and social issues involved in the design and…- Agreement
- Architecture
- Belief
- benefit sharing
- Collaborations
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Grant Abstract
Implementation of an impact assessment tool to optimize responsible stewardship of genomic data in the cloud
PROJECT NARRATIVE Cloud computing promises to scale up storage, analysis and sharing of health data needed to accelerate research in genomics and precision medicine but methods for evaluating how…- Data science
- bioethics
- Algorithms
- Delphi Study
- computerized tools
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Publication
The importance of attitudes toward and understanding of disability and science in the age of genetics
Research and Practice for Persons with Severe Disabilities