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NIH Sep 1, 2023 | K01
Implementation of an impact assessment tool to optimize responsible stewardship of genomic data in the cloud
Institution: Baylor College of Medicine
FOA Number: PA-20-190
Abstract
PROJECT NARRATIVE Cloud computing promises to scale up storage, analysis and sharing of health data needed to accelerate research in genomics and precision medicine but methods for evaluating how responsible access to and sharing of genomic data is governed in the cloud remain severely underdeveloped. The proposed K01 aims to develop, validate, and implement a reliable tool in partnership with global stakeholders to assess genomic data stewardship across publicly funded repositories worldwide. Findings from this project will expand current strategies for ensuring stewardship systems reinforce community values and proposes a transparent model for reporting stewardship impact among cloud-native repositories going forward.
FUNDING AGENCY:
Funder:
NIHInstitute:
National Human Genome Research InstituteFunding Type:
K01Project Number:
1K01HG013112-01Start Date:
Sep 1, 2023End Date:
Aug 31, 2028PROJECT TERMS:
Data science, bioethics , Algorithms, Delphi Study, computerized tools, cognitive interview, data privacy, genome repository, usability