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  • NIH Sep 1, 2023 | K01

    Implementation of an impact assessment tool to optimize responsible stewardship of genomic data in the cloud

    Principal Investigator(s): RAHIMZADEH, VASILIKI

    Institution: Baylor College of Medicine

    FOA Number: PA-20-190

    Abstract

    PROJECT NARRATIVE Cloud computing promises to scale up storage, analysis and sharing of health data needed to accelerate research in genomics and precision medicine but methods for evaluating how responsible access to and sharing of genomic data is governed in the cloud remain severely underdeveloped. The proposed K01 aims to develop, validate, and implement a reliable tool in partnership with global stakeholders to assess genomic data stewardship across publicly funded repositories worldwide. Findings from this project will expand current strategies for ensuring stewardship systems reinforce community values and proposes a transparent model for reporting stewardship impact among cloud-native repositories going forward.

    FUNDING AGENCY:

    Funder:
    NIH

    Institute:
    National Human Genome Research Institute

    Funding Type:
    K01

    Project Number:
    1K01HG013112-01

    Start Date:
    Sep 1, 2023

    End Date:
    Aug 31, 2028

    PROJECT TERMS:

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