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Grant Abstract
Understanding All of Us Enrollees and Decliners Motivations to Enhance Recruitment and Retention
The proposed project is a qualitative study of recruitment and retention into the All of Us Research Program (AoURP) at a federally qualified health center (FQHC). A key component of the NIH's…- African American
- All of Us Research Program
- Anxiety
- barrier to care
- care systems
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Grant Abstract
Incidental Enhancement: Addressing a Neglected Policy Issue in Human Genome Editing
PROJECT NARRATIVE This project is relevant to public health because achieving the health benefits of preventive gene editing research will depend on governance that is responsive to public concerns.…- Address
- Affect
- Agreement
- Animal Experimentation
- Animals
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Grant Abstract
Center for Research on Ethical, Legal & Social Implications of Psychiatric, Neurologic & Behavioral Genetics
Project Narrative. Advances in psychiatric, neurologic and behavioral (PNB) genetics have brought the prospect of predictive and diagnostic genomic testing for many PNB conditions closer to clinical…- Academic Medical Centers
- Activities of Daily Living
- Address
- Affect
- autism spectrum disorder
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Grant Abstract
Center for Research on Ethical, Legal & Social Implications of Psychiatric, Neurologic & Behavioral Genetics
Project Narrative. Advances in psychiatric, neurologic and behavioral (PNB) genetics have brought the prospect of predictive and diagnostic genomic testing for many PNB conditions closer to clinical…- Academic Medical Centers
- Activities of Daily Living
- Address
- Affect
- autism spectrum disorder
-
Grant Abstract
Development of recommendations and policies for genetic variant reclassification
Project Narrative Currently, there are marked differences in variant classification among clinical laboratories, and genetic variant classification is currently in flux with improvements in the…- Address
- Adoption
- adverse outcome
- Advocate
- Affect
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Grant Abstract
Demographic Patterns of Eugenic Sterilization in California
From the passage of the country's first sterilization law in Indiana in 1907 until the 1960s approximately 60,000 people were sterilized based on eugenic criteria that sought to regulate the…- Archives
- base
- California
- Censuses
- Classification
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Grant Abstract
Rational Integration of clinical SEquencing (RISE)
The advent of clinical genome sequencing to identify patients at risk for serious diseases and to tailor treatments promises to greatly improve health outcomes and provide a foundation for the…- Adopted
- Adoption
- Adult
- Area
- base
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Grant Abstract
Reporting Adult-Onset Genomic Results to Pediatric Biobank Participants and Parents
Project Narrative The potential benefits and harms of returning genomic results to children and their parents are matters of enduring controversy?especially genomic results for adult-onset conditions…- Address
- Adolescent
- Adolescent Development
- Adult
- Affect
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Grant Abstract
University of Utah Center of Excellence in ELSI research (UCEER)
PROJECT NARRATIVE The University of Utah Center for Excellence in ELSI research explores issues relevant to population testing and screening for genetic conditions in the healthcare of women and…- Address
- Advisory Committees
- Affect
- Award
- Cancer Center Planning Grant
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Grant Abstract
Lay and Expert Models of Gene-Environment Interaction Grant
One of the projected health dividends of the Human Genome Project is the use of personalized multi-gene testing to identify individual susceptibilities, so that individuals can undertake preventive…- American Heart Association
- Area
- Area Analyses
- base
- Behavior