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Melanie Myers: A Call for Research on Genetic Counseling Processes and Practices
Dr. Myers discusses this exciting new RFA – and how to use ELSIhub to find and follow up on funding opportunities Melanie Myers, PhD, MS spoke with CERA staff about the new National Human…- Genetic Counseling
- genetic counseling research
- genetic counseling training
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News
ELSI Research Methods Spotlight: Social Network Analysis
Laura M. Koehly, Ph.D., Chief & Senior Investigator at the Social and Behavioral Research Branch (SBRB) of the National Human Genome Research Institute (NHGRI), develops and applies social… -
News
Genetics and Responsibility: More Complicated Than We’d Thought
Watch the recordings of the symposium here By Erik Parens, PhD and Paul S. Appelbaum, MD In 1991, sociologist Abby Lippman proposed the geneticization thesis, i.e., that “genetic science [would]…- genetics and responsibility
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News
Using a Family Advisory Council to Understand the Informational Needs of Prospective Gene Therapy Trial Participants: An Interview with the Co-PIs of the SCDGENE CERA Working Group
Sickle cell disease (SCD), characterized by severe pain crisis and progressive organ damage as well as early death, is one of the most common inherited blood disorders in the world. However, since 90…- sickle cell disease
- gene therapy
- Sickle Cell
- gene therapies
- community based participatory research
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News
Journal of Community Genetics: Call for Papers
CALL FOR PAPERS - SPECIAL ISSUE Global accessibility and applicability of polygenic scores Article submission deadline: July 9th, 2022 Submit at www.editorialmanager.com/jocg/ and…- call for submissions
- Journal of Community Genetics
- special issue
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News
The Genetic Discrimination Observatory: A Key Global Resource in Addressing Genetic Discrimination
UNESCO’s 1997 Universal Declaration on the Human Genome and Human Rights sets up a bold vision, “No one shall be subjected to discrimination based on genetic characteristics that is intended to…- genetic discrimination
- Genomic Information
- Human Rights
- genetic information
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News
Ethical Issues in Pediatric Gene Therapy Clinical Trials
The Working Group on Pediatric Gene Therapy and Medical Ethics (PGTME) was created in 2019 to study ethical issues surrounding research in genetic interventions for pediatric populations. The group…- pediatric gene therapy
- Pediatric Research
- Informed Consent
- Research Ethics
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News
FAQs on Human Genomics Studies
FAQs on Human Genomics Studies are produced and managed by The Hastings Center "The need for socially responsible communication about genomics research is greater than ever. New research into…- FAQs
- FoGS
- knowledge repository
- Behavioral genomics
- Behavioral and Social Science
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News
ELSI in Review • February 2024
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our February 2024 set explores ethical considerations for… -
News
ELSI in Review • March 2024
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our March 2024 set explores liability in applications of…