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Video
Ethical Frameworks for Research Collaboration with Indigenous Communities
Research with Alaska Native and American Indian people has a complex history. American Indian and Alaska Native peoples, are both a racial classification and less known to most Americans, a political… -
Video
ELSIcon2022 Paper: Diversity’s Pandemic Distractions
ELSIcon2022 • Paper • June 1, 2022 Jonathan Kahn Pandemic diseases have a nasty history of racialization. Covid-19 is no exception. Beyond the obvious racist invocations of the “China virus”…- Live
- Paper
- Population screening and public health genomics
- Health Disparities
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Video
Indigenous Peoples & Genomics: Starting a Conversation
This video is linked to the publication: Indigenous Peoples and Genomics: Starting a Conversation Author Names Jenny Morgan Rachel R. Coe Rochelle Lesueur Ruth Kenny Roberta Price Nancy…- Indigenous Peoples
- Genomics
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Video
ELSIcon2022 Paper: Seeking Diverse Inclusion in Bipolar Research: Lessons from a biobank
ELSIcon2022 • Paper • June 1, 2022 Karen Meagher, Monica Taylor-Desir How should biobanks recruit diverse cohorts from historically marginalized communities? Should they measure diversity via…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Video
To Catch a Killer: Law Enforcement Uses of DNA Databases
Overview In 2018, law enforcement identified a suspect in the Golden State Killer case by matching the genomic profile of DNA left at crime scenes to those held in public databases and by using… -
Video
ELSIcon2022 Paper: The Genome and the Biome: Cystic Fibrosis @ Six Feet Apart
ELSIcon2022 • Paper • May 31, 2022 Rebecca Mueller Though cystic fibrosis is often referenced as a mendelian genetic disease, it also provides insights about the human microbiome and the…- Live
- Paper
- Population screening and public health genomics
- identity
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Video
The Challenges of Standardization in a System with Complex Incentives
Gillian Hooker, PhD, ScM, CGC ADWG ELSIconversations Session 1 - April 29, 2022 Question: How is information about patient race, ethnicity, and ancestry on clinical laboratory requisition…- Standardization
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Video
Indigenizing Genomics and Advancing Indigenous Data Sovereignty
The ELSI Friday Forum was held on Friday, February 10, 2023. Indigenous peoples have embodied genetic understanding within Indigenous knowledge systems long before encountering settler-science…- Indigenous genomics
- data sovereignty
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Video
ELSI Friday Forum: Structural Racism and Genomics in the Time of COVID
The 30th anniversary of the Human Genome Project comes at a moment of unprecedented international crisis. The coronavirus now accounts for over one million deaths worldwide and has ravaged…- structural racism
- ELSI Genomics
- Covid-19
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Video
Studying America’s Eugenics Era through an ELSI Lens: Data, Context, and Relevance
We present innovative interdisciplinary research on the history of eugenic sterilization in the 20th century US, with the objective of showcasing new approaches in methodology and dissemination, and…