The ELSI Friday Forum was held on Friday, February 10, 2023.
Indigenous peoples have embodied genetic understanding within Indigenous knowledge systems long before encountering settler-science constructs. Mātauranga Māori was the dominant knowledge system in Aotearoa/New Zealand, with developed concepts of inheritance utilized in agriculture, social systems, family, and identity. The Diné (Navajo) people incorporated understanding of genetics through k’é or clanship systems and through artificial selection in cultivation practices. Through colonization, these Indigenous knowledge systems were displaced by western science, and Indigenous participation in scientific activity was minimized and devalued. Now, genomics is at the leading edge of decolonizing policy and cultural changes, rapidly moving to a model where research is led by and for Indigenous peoples. For instance, genomics research is increasingly led by Māori scientists, communities, and companies providing employment and skills growth, and mātauranga Māori of genomics is beginning to be taught in schools and universities. Furthermore, Indigenous data scientists are also advancing ethical frameworks, consent models, and using digital data tools such as artificial intelligence and machine learning approaches (e.g., blockchain and federated systems) to ensure genomics equitably benefits Indigenous people. The speakers will describe the development of Indigenous-led genomics in Aotearoa/New Zealand and the United States and consider its implications for ELSI research and practice related to genetics and genomics.
Panelist: Phillip Wilcox, BForSci (Hons), PhD (University of Otago)
Panelist: Krystal Tsosie, PhD, MPH, MA (Arizona State University, Native BioData Consortium)
Moderator: Josephine Johnston, LLB, MBHL (The Hastings Center, University of Otago)
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Videos in Series

ELSI Friday Forum - The Genomics of PTSD Risk: Scientific and Ethical Perspectives

ELSI Friday Forum - Population Descriptors in Genomic Research: Applying the NASEM Recommendations

ELSI Friday Forum - Legal and Policy Challenges to Privacy in the Post-Genomic and Post-Dobbs Era

ELSI Friday Forum - Value and Values in Payment for Gene Therapies

ELSI Friday Forum - Visual Storytelling in ELSI Research

ELSI Friday Forum - Wrestling with Social and Behavioral Genomics

ELSI Friday Forum - Genetic Advantages in Sports: When Do They Count as "Doping"?

ELSI Friday Forum - Genetics and AI: Group Privacy and Fairness

ELSI Friday Forum - Advocacy and Allyship in ELSI: Opportunities and Challenges

ELSI Friday Forum - Decoloniality and Genetic Ancestry: Situating the "African Genome"

ELSI Friday Forum - Legal Challenges to Newborn Screening Research

ELSI Friday Forum - Impact of SCOTUS's Dobbs Decision on Prenatal Genomics Research and Practice

ELSI Friday Forum - Addressing Algorithmic Harms: Practices and Provocations for Health AI

ELSI Friday Forum - Balancing Data Privacy and Data Sharing: Normative and Technical Approaches

ELSI Friday Forum - Genomic Imaginaries: Sparking Dialogue between ELSI and Literary Studies

ELSI Friday Forum - Ensuring Equitable Use of New Genetic Technologies: Lessons from Eugenics

ELSI Friday Forum - New ACMG Guidance on Carrier Screening: More or Less Equitable?

ELSI Friday Forum - Benefit-sharing and Pharmaceutical Development in Africa: What Does Equity Mean?
ELSI Friday Forum - Genomic Data Sharing: Putting Principles and Policy into Practice
ELSI Friday Forum - Current Legal Challenges to Abortion: Implications for Prenatal Genetics
ELSI Friday Forum - Ethical Challenges in Novel Gene Therapies for Sickle Cell Disease

ELSI Friday Forum - Widening the Lens: Using Arts in ELSI Research

ELSI Friday Forum - Migrant DNA: Context, Ethics and Legal Issues

ELSI Friday Forum - Genomics and Infectious Disease: Scientific and ELSI Issues of COVID

ELSI Friday Forum - ELSI Friday Forum: Biobanking in the Era of COVID

ELSI Friday Forum - Addressing Racism in Research and Clinical Practice
