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Video
ELSIcon2022 Listening Session: ELSI and the All of Us Research Program
ELSIcon2022 • Networking Session • May 31, 2022 Katherine Blizinsky, Subhashini Chandrasekharan This listening session is intended to engage ELSI researchers and stakeholders to: i)…- Live
- Networking Session
- All of Us Research Program
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Video
ELSIcon2022 Networking Session: Salt In My Soul: A Panel Discussion of the Documentary
ELSIcon2022 • Networking Session • June 2, 2022 Diane Shader Smith, Emily Kramer-Colinkoff, Will Battersby, Rebecca Mueller Salt In My Soul, a recently released documentary, chronicles the life…- Live
- Networking Session
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Video
ELSIcon2022 Panel: Beyond the Binary: A Panel Discussion About Gender, Genomics, and Justice
ELSIcon2022 • Panel Session 3 • May 31, 2022 Leila Jamal, Tala Berro, Kellan Baker, Kimberly Zayhowski The term gender diversity refers to a spectrum of identities that exist on a continuum…- Live
- Panel
- Stigma and discrimination
- health disparities
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Video
ELSIcon2022 Late-Breaking: Victims of Eugenic Sterilization in Utah: Demographics and Survivor Estimate
ELSIcon2022 • Networking Session • Late-breaking Abstracts • June 1, 2022 James Tabery, Nicole Novak, Lida Sarafraz, Aubrey Mansfield Eugenicists in America, at the beginning of the…- Live
- Networking Session
- Late-breaking Abstracts
- Eugenic sterilization in the 20th century
- Race, disability, and gender studies
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Video
ELSIcon2022 Paper: An ELSI-informed strategy to use DNA data for humanitarian family reunifications
ELSIcon2022 • Paper • May 31, 2022 Sara H Katsanis, Diana Madden Family separation—whether caused by armed conflict, repressive regimes, disasters, or immigration policies—is traumatic for…- Live
- Paper
- Data and data stewardship
- identity
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Video
ELSIcon2022 Paper: Interrogating the Value of Return: Stakeholders’ Perspectives on Return of Results in Biomedical Research
ELSIcon2022 • Paper • June 1, 2022 Caitlin McMahon, Nicole Foti, Mel Jeske, William Britton, Janet Shim, and Sandra Soo-Jin Lee on behalf of Ethics of Inclusion Study Team Over the last decade…- Live
- Paper
- Return of Results
- precision medicine
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Video
Precision Medicine Research, ‘All of Us’, and Inclusion
A Discussion for Journalists • November 16, 2021 This is the third in a series "Genomics in Society: New Developments, New Questions: Discussions with Journalists" hosted by Hastings Center, in…- All of Us
- precision medicine research
- inclusion
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Video
ELSIcon2022 Paper: Symbolic Legislation and the Regulation of Stroke Biobanking and Genomics Research in Sub-Saharan Africa
ELSIcon2022 • Paper • May 27, 2022 Muyiwa Adigun, Babatunde R. Ojebuyi, Joshua Akinyemi, Kolawole Wahab, Albert Alpalu, Fred S. Sarfo, Lukman F. Owolabi, Rabiu Musbahu, Reginald Obiako, Mayowa…- Laws and research sites
- Biobanking and genomic databases
- Paper
- Pre-Recorded
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Video
Integrating ELSI and Genomics: Past, Present and Future (Keynote)
In 1990, the first Program Announcement for the ELSI Program solicited research proposals across nine domains in the intersection between human genetics and society. The idea was to sponsor research… -
Video
ELSIcon2022 Panel: Towards Justice- Race, ELSI, and Imagined Futures
ELSIcon2022 • Panel Session 17 • June 2, 2022 Melissa Creary, Kadija Ferryman ELSI has had to contend with the ways that the field has and has not adequately attended to race and racism.…- Live
- Panel
- Reflections on the ELSI field
- Gene therapy and gene editing