Series
The 5th ELSI Congress - ELSIcon2022
Title
ELSIcon2022 Listening Session: ELSI and the All of Us Research Program
Type
Conference

ELSIcon2022 • Networking Session • May 31, 2022

Katherine Blizinsky, Subhashini Chandrasekharan

This listening session is intended to engage ELSI researchers and stakeholders to: i) disseminate program’s experiences and learnings on ELSI issues, (ii) share insights from ELSI researchers on, and relevant to the program, and (iii) gather input on emerging and future ELSI considerations for the All of Us Research Program. The emphasis of this session will be listening to and learning from the ELSI community in ways that may improve All of Us going forward. In the last two years the All of Us Research Program has actively integrated ELSI stakeholder's perspectives in the development of policies, practices, and design of the program by leveraging internal and external subject matter expertise. The program has also learned from various activities (such as oversight of data access and use) about integrating ELSI considerations into research practice. This session aims to create a space for open discussion and exchange of learnings and insights from practice and ELSI research with a focus on current and emerging ELSI considerations for the All of Us Research Program. These may include concerted use of genomic and social determinants of health data, return of genetic results, and meaningful inclusion and health equity considerations in precision medicine research.

Tags

Keywords
Live
Networking Session
All of Us Research Program

Videos in Series

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 12

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 17

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 15

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022 Paper: Fresh Air for Genetic Data Sharing

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Flash Session 2

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Moderated Plenary Panel

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 14

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 13

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 11

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 10

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 9

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022 Paper: Diversity’s Pandemic Distractions

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 6

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 5

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 8

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 7

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022 Trainee Networking Session: Working with NHGRI

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 4

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 3

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 2

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 1

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Flash Session 1

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022 Paper: The ELSI of Pandemic Biobanking

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022 Paper: Whose future should we worry about?

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022 Paper: ELSI and the New Precision Stewards?

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022 Paper: Toward an anthropology of rare disease

The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022 Paper: In the Shadows of Virtual Family Trees

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