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Video
ELSIcon2022 Flash: The Perspective on Healthcare Providers on the Return of Secondary Genetic Findings in Africa
ELSIcon2022 • Flash • May 27, 2022 Abimbola Oladayo, Sydney Prochaska, Tamara Busch, Lanre Adeyemo, Lord Jephthah Joojo Gowans, Mekonen Eshete, Waheed Awotoye, Azeez Alade, Adebowale Adeyemo, Peter…- return of results
- Genetic testing and screening
- Flash
- Pre-Recorded
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Video
ELSIcon2022 Paper: Genetic testing for hereditary cancer risk in India: A Case Study
ELSIcon2022 • Paper • May 31, 2022 Pooja Chitre, Janis Geary, Robert Cook Deegan India has a distinct history of dynamic migration, cultural and ethnic diversity, and widespread endogamy and…- Live
- Paper
- Data and data stewardship
- Genetic testing and screening
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Video
ELSIcon2022 Paper: COVID, Prenatal Genetic Testing, and the Digital Divide: Beyond Technology
ELSIcon2022 • Paper • June 2, 2022 Ruth M. Farrell, Christina Collart COVID and the events of the past year have brought to light the insidious issues of systemic racism, disparities, and…- Live
- Paper
- Access to genetic screening and therapies
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Video
Exploring Difference in the Biology Classroom: What Genetic Ancestry Tests Mean (and What They Don't)
Presenters: Janina Jeff, PhD, MS & Jada Benn Torres, PhD Co-Moderators: Rob O'Malley, PhD & Nadine Vincenten, PhD Date: April 11 2023, 3-4 pm PT / 6-7 pm ET Genetic…- DTC
- genetic ancestry testing
- race and genetics
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Video
ELSIcon2022 Paper: Exploitation in Genetics Research: Vulnerability, Unfairness, and Degradation
ELSIcon2022 • Paper • May 27, 2022 Naomi Scheinerman While the concern of “exploitation” features quite prominently in bioethics, such as in patient payment for participation in genetics research,…- Language and categorization
- Biobanking and genomic databases
- Paper
- Pre-Recorded
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Video
A Prospectus on Ethical Issues in the Context of Collaborations Between Academic and Non-academic Institutions on Genetics Research
Emily Bullis, MA and Anjali Shastri, PhD - 23andMe ELSIconversations - February 26, 2021 Genetics research has been far from equitable in terms of engaging representative numbers of participants of…- Direct to Consumer Genetic Testing
- Underrepresented Groups
- Genetic Research
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Video
ELSIcon2022 Panel: Ethical, Clinical, Legal, and Economic Issues Surrounding Genetic Variant Reinterpretation
ELSIcon2022 • Panel • June 3, 2022 Paul Appelbaum, Wendy Chung, Gary Marchant, Jose Pagan The knowledge base for interpreting genetic variants changes as new cases are reported, population…- Live
- Panel
- return of results
- Genetic testing and screening
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Video
ELSIcon2022 Flash: An Exploration of Family Connection and African Ethnic Identity Development Among African Americans Finding African Genetic Relatives While Using Consumer Genetic Genealogy Services
ELSIcon2022 • Flash • May 27, 2022 LaKisha David African Americans generally lack awareness of their ancestral family history due to the forced displacement of their ancestors during the…- Relative finding/matching
- identity
- Flash
- Pre-Recorded
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Video
ELSIcon2022 Paper: The Role of Patient Advocacy Groups Following Prenatal Diagnosis of a Genetic Condition
ELSIcon2022 • Paper • May 27, 2022 Kaitlynn Craig, Marsha Michie, Kirsten Riggan Little research has been conducted to support the a priori claim that prenatal genetic testing is justified by the…- Genetic Counseling
- Paper
- Pre-Recorded
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Video
ELSIconversations ELSICon2022: Access to Genetic Screening and Therapies: Case Study of Sickle Cell Disease
Co-Moderators: Liza Johnson, MD, MPH, MSB & Mildred Cho, PhD Presenters: Jeanne O'Brien, MD, MSc & Joshua Combs, MD, FACOG Link to pre-recorded video: Will…- Genetic Screening