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Grant Abstract
The Human Genome Project: Reaching the Minority Communities of Maryland
This two-day conference will provide information about the Human Genome Project (HGP), and specifically the ethical, legal, and social implications (ELSI) of the HGP, to members of minority… -
Grant Abstract
Genome Diner: A strategy for community-researcher engagement in genome sciences
As evidenced by the endless reports of new discoveries in genetics and genomics over the past few decades, the public's views will substantially influence the uptake and use of these new…- Benefits and Risks
- Biological Sciences
- Biomedical Research
- Class
- clinical application
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Grant Abstract
Faith Forum on Genetics: An ELSI Educational Intervention for Religious Communities
This community education intervention is a collaborative initiative between Pacific University, the Pacific Institute for Ethics and Social Policy, and Ecumenical Ministries of Oregon. it is a pilot…- behavioral /social science research tag
- Clinical Research
- education evaluation /planning
- educational resource design /development
- Ethics
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Grant Abstract
Utility of Genomic Sequencing in Community Care Contexts
PROJECT NARRATIVE Families with children who have identified deficits in speech and/or sensory or musculoskeletal impairments without a known cause may be referred for genetic testing to find out…- Address
- Advisory Committees
- Area
- base
- Behavior
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Grant Abstract
Human Genome Project: Community Conversations
This 3-Year Project (Amended Application) seeks support for an innovative inter-regional public education model, in New York and Arizona, aimed at developing and using public libraries as centers for…- biotechnology
- Clinical Research
- education evaluation /planning
- Ethics
- Genetic Screening
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Grant Abstract
Community Engagement Core
NARRATIVE / PUBLIC HEALTH RELEVANCE STATEMENT The Community Engagement Core (CEC) will provide the oversight needed to ensure the U54 Pacific Center for Genome Research (PCGR)’s consideration of…- medically underserved
- Arterial Disorder
- Atherosclerosis Risk in Communities
- Community Health Education
- Framingham Heart Study
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Grant Abstract
Genetic Privacy and Identity in Community Settings - GetPreCiSe
Concerns about privacy and personal identity impede use of data about genomic variation, phenotypes, demographics, and exposures from large numbers of people to uncover the contributions of such…- Attitude
- Automobile Driving
- base
- Belief
- Benefits and Risks
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Grant Abstract
Community-Based Evaluation of APOL1 Genetic Testing in African Americans
Endstage renal disease (ESRD) or kidney failure affects over 500,000 persons in the United States and disproportionately affects racial and ethnic minority populations. Compared to whites, African…- advocacy organizations
- Affect
- African American
- Age
- Anxiety
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Grant Abstract
Genetic Privacy and Identity in Community Settings - GetPreCiSe
The incorporation of genetics and genomics into medical care and the public domain raises new challenges for how we understand privacy and identity, concepts that have long been closely linked in…- Address
- Advertising
- Affect
- Age
- All of Us Research Program
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Grant Abstract
Just Inclusion and Equity: Negotiating Community-Research Partnerships in Genomics Research (JUSTICE)
PROJECT NARRATIVE This study aims to investigate facilitators and barriers to long-term equitable partnerships in genomics research between communities and research institutions. We focus on legal…- community based participatory research
- trustworthiness
- stakeholder perspectives
- Beneficence
- Decision making