Just Inclusion and Equity: Negotiating Community-Research Partnerships in Genomics Research (JUSTICE)

NIH Sep 1, 2023 | R01

Just Inclusion and Equity: Negotiating Community-Research Partnerships in Genomics Research (JUSTICE)

Principal Investigator(s): LEE, SANDRA SOO-JIN, CALLIER, SHAWNEEQUA, SHIM, JANET K

Institution: COLUMBIA UNIVERSITY HEALTH SCIENCES

FOA Number: PAR-20-254

Abstract

PROJECT NARRATIVE This study aims to investigate facilitators and barriers to long-term equitable partnerships in genomics research between communities and research institutions. We focus on legal and organizational infrastructures and practices that shape how decisions are made, by whom, and with what consequences, and changes that can support innovative and transformative approaches to equity, benefit and justice.

FUNDING AGENCY:

Funder:
NIH

Institute:
National Human Genome Research Institute

Funding Type:
R01

Project Number:
1R01HG012841-01A1

Start Date:
Sep 1, 2023

End Date:
Jun 30, 2027

PROJECT TERMS:

community based participatory research, trustworthiness, stakeholder perspectives, Beneficence, Decision making , precision medicine

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