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Video
ELSIcon2022 Paper: Navigating community engagement in clinical trial research
ELSIcon2022 • Paper • June 1, 2022 Mikaella Caruncho, Jennifer James, Galen Joseph In recent years, community engagement approaches to genomic research have grown in popularity, motivated by…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Grant Abstract
Faith Forum on Genetics: An ELSI Educational Intervention for Religious Communities
This community education intervention is a collaborative initiative between Pacific University, the Pacific Institute for Ethics and Social Policy, and Ecumenical Ministries of Oregon. it is a pilot…- behavioral /social science research tag
- Clinical Research
- education evaluation /planning
- educational resource design /development
- Ethics
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Grant Abstract
Utility of Genomic Sequencing in Community Care Contexts
PROJECT NARRATIVE Families with children who have identified deficits in speech and/or sensory or musculoskeletal impairments without a known cause may be referred for genetic testing to find out…- Address
- Advisory Committees
- Area
- base
- Behavior
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Publication
Re-envisioning community genetics: Community empowerment in preventive genomics
Journal of Community Genetics -
Publication
Indigenous genomics
ScienceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Access and management: Indigenous perspectives on genomic data sharing
Ethnicity & Disease -
Grant Abstract
Human Genome Project: Community Conversations
This 3-Year Project (Amended Application) seeks support for an innovative inter-regional public education model, in New York and Arizona, aimed at developing and using public libraries as centers for…- biotechnology
- Clinical Research
- education evaluation /planning
- Ethics
- Genetic Screening
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Grant Abstract
Community Engagement Core
NARRATIVE / PUBLIC HEALTH RELEVANCE STATEMENT The Community Engagement Core (CEC) will provide the oversight needed to ensure the U54 Pacific Center for Genome Research (PCGR)’s consideration of…- medically underserved
- Arterial Disorder
- Atherosclerosis Risk in Communities
- Community Health Education
- Framingham Heart Study
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Video
ELSIconversations: Responsible Stewardship: Establishing Standard Data Elements and a Community of Practice
In the final session, panelists lead the charge for establishing a community of practice that is best able to share experiences across programs. Topics include key data elements, reporting and…- community