ELSIconversations: Responsible Stewardship: Establishing Standard Data Elements and a Community of Practice

In the final session, panelists lead the charge for establishing a community of practice that is best able to share experiences across programs. Topics include key data elements, reporting and sharing, promoting equity through knowledge sharing, and ensuring program sustainability. This session is be forward-looking, and we hope it generates ideas for building a community of health services researchers, program directors, clinicians, and ELSI researchers who care about promoting ethical implementation of population genomic screening. 

Speakers: Alanna Rahm, PhD, MS, LGC & Megan Roberts, PhD

Moderator: Kim Foss, MS, CGC

Suggested citation:

Rahm, A., Roberts, M. & Foss, K. (2023, February 3). Session 3: Responsible stewardship: Establishing standard data elements and a community of practice [Video]. The Center for ELSI Resources and Analysis (CERA). https://elsihub.org/video/elsiconversations-responsible-stewardship-establishing-standard-data-elements-and-community